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Top Stories

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June 24, 2024

Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program

Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy,  On behalf of the […]

Read More… from Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program

June 18, 2024

Saint Louis University Researchers Identify a Biomarker for Severe Liver Disease in Infants

ST. LOUIS — In a new study, Saint Louis University School of Medicine researchers and colleagues have identified biomarkers in […]

Read More… from Saint Louis University Researchers Identify a Biomarker for Severe Liver Disease in Infants

June 3, 2024

May 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from May 2024 PubMed Articles

May 30, 2024

Recent Publication on INBRX-101 in Journal of the COPD Foundation

Today, Volume 11, Issue 3 of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation (JCOPDF) was published online and included Recombinant Alpha-1 […]

Read More… from Recent Publication on INBRX-101 in Journal of the COPD Foundation

May 24, 2024

Alpha-1 Foundation recognizes 2024 Grants Award Recipients at ATS Reception

On Monday, May 20th over 160 attendees joined together in San Diego, California during the annual ATS International Conference to […]

Read More… from Alpha-1 Foundation recognizes 2024 Grants Award Recipients at ATS Reception

May 23, 2024

Building Friends for a Cure Walk in memory of Lorraine Cimino

On Saturday, May 19th, 2024 Mario Cimino together with friends and family organized a walk in memory of his late […]

Read More… from Building Friends for a Cure Walk in memory of Lorraine Cimino

May 20, 2024

Celebrate Clinical Trials Day May 20, 2024

The Alphas in our community are what powers Alpha-1 research! In honor of Clinical Trials Day, help us find a […]

Read More… from Celebrate Clinical Trials Day May 20, 2024

May 16, 2024

Happy 100th Birthday Dr. Gerard Turino!

The Alpha-1 Foundation honors Dr. Gerard Turino, a pulmonary trailblazer today, May 16th, 2024 on his 100th birthday! Gerard M. Turino, […]

Read More… from Happy 100th Birthday Dr. Gerard Turino!

May 6, 2024

March & April 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from March & April 2024 PubMed Articles

April 29, 2024

Grifols Celebrates 50th Anniversary of its Flagship Site

On April 18th, the Alpha-1 Foundation was proud to celebrate Grifols 50th anniversary of its flagship site in Clayton, NC.  Grifols […]

Read More… from Grifols Celebrates 50th Anniversary of its Flagship Site

April 25, 2024

Raising Awareness on European Alpha-1 Awareness Day, April 25, 2024

April 25, 2024 marks the seventh annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]

Read More… from Raising Awareness on European Alpha-1 Awareness Day, April 25, 2024

April 25, 2024

Study furthers understanding of lung regeneration

Researchers at Boston Medical Center (BMC) and Boston University (BU) announced findings from a new research study, detailing the development […]

Read More… from Study furthers understanding of lung regeneration

April 3, 2024

New Caps on Cost of Inhalers

President Biden on Wednesday will tout Democrats’ efforts to lower the cost of inhalers after drugmakers announced plans to cap […]

Read More… from New Caps on Cost of Inhalers

March 27, 2024

Building Friends for a Cure Training

The Alpha-1 Foundation was excited to convene a Building Friends for a Cure (BFC (Building Friends for a Cure)) Training […]

Read More… from Building Friends for a Cure Training

March 26, 2024

26th Gordon L. Snider Critical Issues Workshop

Pragmatic Solutions to Clinical Trial Endpoints for Lung Diseases in AATD, and AAT Variant Nomenclature The Alpha-1 Foundation was excited […]

Read More… from 26th Gordon L. Snider Critical Issues Workshop

March 20, 2024

Alpha-1 Foundation Among 32 Organizations in Response to CMS Draft MP3 Guidance

March 15, 2024 Dr. Meena Seshamani Director, Center for Medicare Deputy Administrator, Centers for Medicare & Medicaid Services 7500 Security […]

Read More… from Alpha-1 Foundation Among 32 Organizations in Response to CMS Draft MP3 Guidance

March 17, 2024

Happy St. Patrick’s Day from The Alpha- 1 Foundation

On this St. Patrick’s Day, we are lucky and grateful for the outstanding and unwavering commitment of the Alpha-1 community. […]

Read More… from Happy St. Patrick’s Day from The Alpha- 1 Foundation

March 6, 2024

Join us in Boston for the 16th Annual Celtic Connection

The 16th Annual Celtic Connection will take place this weekend on Saturday, March 9th in at the Newton Marriott in Boston, […]

Read More… from Join us in Boston for the 16th Annual Celtic Connection

March 6, 2024

February 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from February 2024 PubMed Articles

February 29, 2024

Cassidy, Warner, Klobuchar Introduce Legislation to Create Easier Access to Supplemental Oxygen for Medicare Beneficiaries

WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]

Read More… from Cassidy, Warner, Klobuchar Introduce Legislation to Create Easier Access to Supplemental Oxygen for Medicare Beneficiaries

February 20, 2024

Rare Disease Day: Reasons for Action

CSL Behring asked the leaders of patient advocacy groups – and CSL staff – to explain why rare conditions deserve […]

Read More… from Rare Disease Day: Reasons for Action

February 20, 2024

Celtic Connection 2024

Traditional Irish Stick Fighting demonstration at Alpha-1 Fundraiser

Saturday, March 9, 2024 / 7:00 pm- 11:00 PM

Boston Marriott Newton, 2345 Commonwealth Avenue, Newton MA 02466 […]

Read More… from Celtic Connection 2024

February 14, 2024

January 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from January 2024 PubMed Articles

January 29, 2024

Sanofi wades into AATD in bid for Inhibrx’s rare disease drug

“The acquisition of Inhibrx by Sanofi represents an exciting moment for the Alpha-1 community. Sanofi is a leading expert in […]

Read More… from Sanofi wades into AATD in bid for Inhibrx’s rare disease drug

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