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The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]
CSL Behring asked the leaders of patient advocacy groups – and CSL staff – to explain why rare conditions deserve […]
Traditional Irish Stick Fighting demonstration at Alpha-1 Fundraiser
Saturday, March 9, 2024 / 7:00 pm- 11:00 PM
Boston Marriott Newton, 2345 Commonwealth Avenue, Newton MA 02466 […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
“The acquisition of Inhibrx by Sanofi represents an exciting moment for the Alpha-1 community. Sanofi is a leading expert in […]
Read More… from Sanofi wades into AATD in bid for Inhibrx’s rare disease drug
CSL Behring, a business unit of CSL, has been providing the Alpha-1 community with ZEMAIRA for 20 years, and are […]
November Alpha-1 Awareness Month was a huge success. The Alpha-1 Community has officially reached and surpassed its 2023 fundraising goal. […]
Read More… from 2023 Alpha-1 Awareness Month: Week 4 Highlights
As we approach the last week of Alpha-1 Awareness Month, we are inspired by the Alpha-1 community and their dedication […]
Read More… from 2023 Alpha-1 Awareness Month: Week 3 Highlights
Week 2 of the 2023 Alpha-1 Awareness Month was a huge success! The Alpha-1 Virtual Walks are off to an […]
Read More… from 2023 Alpha-1 Awareness Month: Week 2 Highlights
“Make your Move” into the journey of Alpha-1 Awareness Month with our Week 1 Recap! The enthusiasm and commitment of […]
Read More… from 2023 Alpha-1 Awareness Month: Week 1 Highlights
November 1, 2023 • Alpha-1 Canada Alpha-1 Canada is thrilled to announce that after much deliberation, the Conference of Deputy […]
On Wednesday, October 26th, the 2023 Annual Franchise Conference of Vital Care took place in Orlando, FL. What made this […]
“The Alpha-1 Foundation is proud to endorse The PLASMA Act in support of patients with rare diseases, like Alpha-1 antitrypsin deficiency and […]
The Alpha-1 Foundation, along with 60 rare disease organizations, is proud to support the “PROTECT Rare Act” to support patients […]
Alpha Dan Coffin shared his plasma story with the PPTA to increase awareness of plasma donations and thank the donors […]
The Alpha-1 Foundation was proud to partner with the American Lung Association (ALA) for the 27th year of Escape the […]
Read More… from 2023 Escape to the Cape & Alpha-1 Riding for a Reason
Alphas, friends, and family came together on August 6, 2023 for the Step Forward for Alpha-1 Colorado Walk and Picnic. […]
Read More… from Step Forward for Alpha-1 Denver Walk & Picnic
Augmentation Therapy For Severe Alpha-1 Antitrypsin Deficiency Improves Survival And Is Decoupled From Spirometric Decline- A Multi-National Registry Analysis Authors: […]
Kenneth Irvine of the Alpha-1 Foundation spoke with Geoff Case of RARE Revolution Magazine about the organization’s research efforts. Kenneth […]
Read More… from Alpha-1: Best practices for testing for this and other late-onset genetic diseases
Donald Helms hosted his first Building Friends for A Cure Event (BFC) Golf Tournament in honor of the one-year anniversary […]
Craig Hazelden, Alpha-1 Kid parent, set out to do an Ironman triathlon in Bolton, England to raise funds for the […]
Read More… from Alpha-1 Parent completes Ironman triathlon in honor of Alpha Son
WASHINGTON, D.C. – Reps. María Elvira Salazar (R-FL) and Chellie Pingree (D-ME) have reintroduced the John W. Walsh Alpha-1 Home Infusion Act. If passed, […]
Your questions answered by Skip Scribner, NREMT-P, President at Advanced Aeromedical, Inc. Q: How do I travel on airplanes […]
