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Top Stories

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August 18, 2022

HHS Announces New Campaign to Increase U.S. Blood and Plasma Donations

Alpha-1 and other plasma consumers worked with the Department of Health and Human Services (HHS) and the plasma industry over […]

Read More… from HHS Announces New Campaign to Increase U.S. Blood and Plasma Donations

August 17, 2022

HR 5376: The Inflation Reduction Act is Signed Into Law

HR 5376: THE INFLATION REDUCTION ACT On Friday, August 12th, the House of Representatives passed the Inflation Reduction Act. The […]

Read More… from HR 5376: The Inflation Reduction Act is Signed Into Law

July 27, 2022

How to Boost Muscle Cell Production of Gene Therapy Proteins

The following is an article originally published by Genetic Engineering & Biotechnology News In a major new development in the […]

Read More… from How to Boost Muscle Cell Production of Gene Therapy Proteins

July 25, 2022

How Long Does Covid Immunity Last? Will a Second Illness Be Worse? How Can I Prepare?

Some reinfection questions, answered. By Knvul Sheikh JUNE 11, 2022, NEW YORK TIMES – If you’re one of the millions of […]

Read More… from How Long Does Covid Immunity Last? Will a Second Illness Be Worse? How Can I Prepare?

July 22, 2022

Former Delegate Jack Reid passes away at 79, remembered as stalwart Henrico Republican & Alpha-1 Foundation Past Board Member and Advocate

Longtime Henrico Delegate to the Virginia General Assembly John S. “Jack” Reid passed away peacefully on Sunday, July 17th, 2022, […]

Read More… from Former Delegate Jack Reid passes away at 79, remembered as stalwart Henrico Republican & Alpha-1 Foundation Past Board Member and Advocate

July 22, 2022

Alpha-1 Foundation remembers Alpha A. Curts Cooke

“Curts was an active member of the Alpha-1 Foundation’s development committee for nearly 10 years. His diagnosis with Alpha-1 empowered […]

Read More… from Alpha-1 Foundation remembers Alpha A. Curts Cooke

July 20, 2022

Catherine Vernon Appointed to Alpha-1 Foundation Board of Directors

The Alpha-1 Foundation is proud to announce the appointment of Catherine Vernon to the Alpha-1 Foundation Board of Directors. Catherine […]

Read More… from Catherine Vernon Appointed to Alpha-1 Foundation Board of Directors

July 15, 2022

Biden Administration to Again Extend the Covid Public-Health Emergency

The US government will once again extend the Covid-19 public health emergency, continuing measures that have given millions of Americans […]

Read More… from Biden Administration to Again Extend the Covid Public-Health Emergency

July 12, 2022

Saint Louis University and Industry Partners Discover Treatment for Rare, Genetic Liver Disease

“We are proud of the investment Alpha-1 Foundation has made over the years of the work being done by Dr. […]

Read More… from Saint Louis University and Industry Partners Discover Treatment for Rare, Genetic Liver Disease

July 8, 2022

No Horses Needed; An Alpha on the US Men’s Kayak Polo Team!

The Alpha-1 Foundation is proud to share this inspiring story and great accomplishment, submitted by Andrew Irvine, a fellow Alpha […]

Read More… from No Horses Needed; An Alpha on the US Men’s Kayak Polo Team!

June 27, 2022

AlphaNet Honors Ab Rees’ Legacy with $200,000 Donation to Alpha-1 Foundation for ‘Ab Rees Fast Track Awards’

In honor of the late Ab Rees’ extraordinary contributions to the Alpha-1 community, AlphaNet is proud to donate $200,000 to […]

Read More… from AlphaNet Honors Ab Rees’ Legacy with $200,000 Donation to Alpha-1 Foundation for ‘Ab Rees Fast Track Awards’

June 23, 2022

Announcing the New Chair of the Alpha-1 Foundation Board of Directors

FOR IMMEDIATE RELEASE The Alpha-1 Foundation announces the selection of Mr. Jon Hagstrom as the new Chair of the Alpha-1 […]

Read More… from Announcing the New Chair of the Alpha-1 Foundation Board of Directors

June 22, 2022

CDC Recommends 2 COVID Vaccines for Very Young Children

NEW YORK TIMES June 18, 2022- The Centers for Disease Control and Prevention on Saturday recommended Covid vaccines for children […]

Read More… from CDC Recommends 2 COVID Vaccines for Very Young Children

June 11, 2022

Day 4 Recap: Thank you for Taking the Time to be part of the Hybrid Alpha-1 National Conference

June 11, 2022- Thank you to CSL Behring for opening day four with World-Class Professional Magician, Harrison Kramer and his truly interactive virtual […]

Read More… from Day 4 Recap: Thank you for Taking the Time to be part of the Hybrid Alpha-1 National Conference

June 10, 2022

Your Day Three Recap #A1NC22

June 10, 2022- Today, we launched our hybrid event model combining the in-person events in Miami, Florida and New York […]

Read More… from Your Day Three Recap #A1NC22

June 10, 2022

Day 2 Recap of the 2022 Hybrid Alpha-1 National Conference

June 9, 2022- Day two of the Hybrid Alpha-1 National Conference was a great day of interaction, education and community! […]

Read More… from Day 2 Recap of the 2022 Hybrid Alpha-1 National Conference

June 8, 2022

2022 Hybrid Alpha-1 National Conference: Day One Recap

June 8, 2022- Today kicked off the first day of the 2022 Hybrid Alpha-1 National Conference. We were joined by […]

Read More… from 2022 Hybrid Alpha-1 National Conference: Day One Recap

May 24, 2022

Connecticut Establishes a Permanent Rare Disease Advisory Council

May 24, Hartford, CT – Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions […]

Read More… from Connecticut Establishes a Permanent Rare Disease Advisory Council

May 23, 2022

2022 American Thoracic Society International Conference

The American Thoracic Society International Conference annually convenes pulmonary experts from around the world to learn about the latest advances […]

Read More… from 2022 American Thoracic Society International Conference

May 11, 2022

The Ad Hoc Group Fiscal Year 2023 Recommendation

The Alpha-1 Foundation signed on with nearly 400 organizations and institutions that signed on to the Ad Hoc Group’s FY […]

Read More… from The Ad Hoc Group Fiscal Year 2023 Recommendation

May 11, 2022

ATS Patient Education: Information Series- MZ Alpha-1 Antitrypsin Deficiency

The American Thoracic Society produces the ATS Patient Education Series as a resource for patients, families and caregivers. The attached […]

Read More… from ATS Patient Education: Information Series- MZ Alpha-1 Antitrypsin Deficiency

May 5, 2022

COVID-19 Therapies, Treatment & Prevention

It is hard to imagine that it has been two years since our lives changed completely due to the onset […]

Read More… from COVID-19 Therapies, Treatment & Prevention

April 28, 2022

2022 Improving Care for Alpha-1 Patients Global Webinar

In anticipation of the 2022 European Alpha-1 Awareness Day on Monday, 25 April 2022, Alpha-1 Global hosted the Improving Care […]

Read More… from 2022 Improving Care for Alpha-1 Patients Global Webinar

April 15, 2022

The Alpha- 1 Community Mourns the Loss of Ab Rees

It is with great sadness that we share the news that Ab Rees passed away on April 14, 2022. Ab […]

Read More… from The Alpha- 1 Community Mourns the Loss of Ab Rees

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