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From funding breakthrough research to hosting programs and events that keep our community strong and healthy until we find a cure, no other organization does more for families with Alpha‑1.
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For two years, Siobhan struggled with declining exercise tolerance and no explanation. A cardiologist finally recommended testing for Alpha-1 Antitrypsin Deficiency (Alpha-1), and the diagnosis provided the answers she desperately needed, transforming fear into clarity and a path forward.
“I inherited the ZZ genes, which are the most deficient, and although a bit scary at first, the Alpha-1 Foundation was extremely encouraging, showing immediate support and guidance,” says Siobhan.
Your generosity helps fund the research and programs that give Siobhan a hopeful future and the support that reminds her that she is not alone.
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