Author: Alpha-1 Foundation

Week #4 of the Virtual Walk has come to an end… and the feeling of THANKFULNESS for the Alpha-1 community […]

Read More… from November Alpha-1 Awareness Month: Week 4 Recap

It is with great sadness that we share the news that AlphaNet Coordinator Doug Turley passed away on November 22, […]

Read More… from The Alpha-1 Community Mourns the Loss of Veteran AlphaNet Coordinator Doug Turley

Week 3 for the Virtual Walk was a huge success! We had many individual walkers from across the country out […]

Read More… from Week 3 Recap: Awareness Month Continues!

The second week of the Alpha-1 Virtual Walks was a huge success! We are officially at the halfway mark of […]

Read More… from Week 2 Recap: Let’s Cure It! Alpha-1 Awareness Month

November is finally here and with it comes cooler temperatures, autumn scenery, and most importantly, Alpha-1 Awareness Month! On November […]

Read More… from Week 1 Recap: Alpha-1 Awareness Month 2022

Grifols receives FDA clearance for AlphaID™ At Home, the first free service for U.S. consumers to determine their risk for […]

Read More… from Grifols receives FDA clearance for AlphaID™ At Home

– Initiates first-in-human trial of next-wave AAT corrector, VX-634 – Phase 2 study evaluating the impact of longer-term treatment with VX-864 to […]

Read More… from Vertex Advances Program Targeting Alpha-1 Antitrypsin Deficiency

TUCSON, Ariz., Oct. 6, 2022 — Critical Path Institute (C-Path) today announced that it has recently launched a pre-consortium collaboration […]

Read More… from C-Path to Lead Pre-Consortium Aimed at Transforming, Accelerating Medical Product Development in Alpha-1 Antitrypsin Deficiency

Following a successful September Advocacy Workshop in Washington DC, the Alpha-1 Foundation has gained significant momentum on the advocacy front, […]

Read More… from How to Make an Impact by Getting Involved in Alpha-1 Advocacy

“The Alpha-1 Foundation is pleased with the FDA’s indication of a potential for accelerated approval of INHBRX -101. A1F values […]

Read More… from Inhibrx Shares Jump Premarket After Talks With FDA on INBRX-101

FOR IMMEDIATE RELEASE In honor of their father’s 80th birthday, Donald Helms Jr. and Donna Flowers are determined to spread […]

Read More… from Raising Alpha-1 Awareness at Drive-In Movie Night

FOR IMMEDIATE RELEASE September 30, 2022- Paul Kosak will be climbing Mount Kilimanjaro an epic adventure starting October 15th with […]

Read More… from Climbing for a Cure #Alpha1ClimbingforaCure

FOR IMMEDIATE RELEASE September 23, 2002- The Alphas are headed to the Cape Cod, Massachusetts this weekend for the annual […]

Read More… from 2022 Escape to the Cape is here!

Alpha-1 patient advocates, Foundation staff, and industry representatives ascended to Capitol Hill to partake in the 2022 Alpha-1 Advocacy Workshop […]

Read More… from Alphas Taking Action in Washington D.C.

The Alpha-1 Foundation is sad to announce that Laura Pearson passed away on September 11, 2022. Laura was a part […]

Read More… from Remembering Laura Pearson

September 19, 2022 The Hon. Patrick Leahy The Hon. Richard Shelby Chairman Vice Chairman Senate Committee on Appropriations Senate Committee […]

Read More… from FY23 Appropriations Letter Sign-On

WASHINGTON — The Food and Drug Administration authorized the first redesign of coronavirus vaccines since they were rolled out in late […]

Read More… from F.D.A. Authorizes Updated Covid Booster Shots Targeting Omicron Subvariants

The Alpha-1 Foundation and undersigned pulmonary organizations and patient advocacy groups have provided comments on the CY 2023 update to […]

Read More… from Medicare and Medicaid Programs; CY 2023 Payment Policies under the Physician Fee Schedule and Other Changes to Part B Payment Policies

Deb Labud of Gainesville, Florida looks forward to attending the bi-yearly transplant games and was excited to get back in […]

Read More… from Two-Time Lung Transplant Recipient Deb Labud Wins Two Gold Medals at the 2022 Transplant Games

August 11, 2022 –– Today, CDC is streamlining its COVID-19 guidance to help people better understand their risk, how to […]

Read More… from CDC streamlines COVID-19 guidance to help the public better protect themselves and understand their risk

Alpha-1 and other plasma consumers worked with the Department of Health and Human Services (HHS) and the plasma industry over […]

Read More… from HHS Announces New Campaign to Increase U.S. Blood and Plasma Donations

HR 5376: THE INFLATION REDUCTION ACT On Friday, August 12th, the House of Representatives passed the Inflation Reduction Act. The […]

Read More… from HR 5376: The Inflation Reduction Act is Signed Into Law