A1F Celebrates 30th Anniversary at 2025 ATS
Honoring Three Decades of Research & Collaboration The Alpha-1 Foundation is enthusiastic to join the American Thoracic Society for the […]
Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
Cruising for a Cure: A Beautiful Night of Purpose and Progress
On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]
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PEOPLE Magazine Feature: Stranger Who Donated Liver to Young Boy Surprises Him at His First Communion
Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]
Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For
FOR IMMEDIATE RELEASE MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]
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April 2025 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Alpha-1 Foundation Launches New Summer Fundraising Campaign: Ice Cream for Alpha-1
FOR IMMEDIATE RELEASE MAY 1, 2025- “I scream, you scream, we all scream for Ice Cream for Alpha-1”. The Alpha-1 […]
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A1F signs-on urging Congress to cosponsor the SOAR Act
The Alpha-1 Foundation (A1F) joins 30 organizations requesting Congress to cosponsor bipartisan legislation A.1406/H.R.2902, the Supplemental Oxygen Access Reform (SOAR) […]
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March 2025 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
A1F proudly convenes the 7th Global Research Conference & 10th Patient Congress in Lisbon, Portugal
The Alpha-1 Foundation’s (A1F) 7th Global Research Conference & 10th Patient Congress kicks off today in Lisbon, Portugal. With a […]
Salazar Reintroduces Bill To Expand Home Infusions For Medicare Beneficiaries With Rare Genetic Disease
On behalf of the Alpha-1 Foundation and entire patient community, we are thrilled with the announcement of the reintroduction of […]
Korro Bio provides update on progress made: KRRO-110
Korro Bio has completed the dosing of the first two single ascending dose cohorts in healthy adult volunteers. They continue […]
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The Celtic Connection honors St. Patrick’s Day and the Legacy of Fred C. Walsh
Today, St. Patrick’s Day is celebrated annually on March 17. Today, people of all backgrounds celebrate St. Patrick’s Day, especially […]
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Honoring Pulmonary Awareness Week: Benefits for Alpha-1 Patients
This week marks Pulmonary Rehabilitation Awareness Week, a time to highlight beneficial programs and resources that help people with lung […]
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Nature Genetics: Alpha-1 Research Publication March 2025
Selection for somatic escape variants in SERPINA1 in the liver of patients with alpha-1 antitrypsin deficiency “This exciting study provides evidence of […]
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Mutated DNA Restored to Normal in Gene Therapy Advance
Exciting breakthrough in Alpha-1 research by Beam Therapeutics shows success in restoring the mutated Alpha-1 gene to normal. This correction […]
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A1F Honors Rare Disease Day 2025: A Day of Advocacy, Awareness, and Action
On Friday, February 28th, 2025, the Alpha-1 Foundation (A1F) celebrated Rare Disease Day, bringing the entire community together in various […]
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The Celtic Connection is coming up… Get out your green attire!
The 17th Annual Celtic Connection will take place on Saturday, March 8, 2025, at the Newton Marriott in Boston, Massachusetts. The […]
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Letter to the Honorable Pam Bondi, Attorney General of the United States
Alpha-1 Foundation signs on with over 150 stakeholders, emphasizing the importance of telemedicine to Attorney General Pam Bondi. February 20, […]
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January 2025 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD
In a recent publication of Charticles, Dr. Marty Zamora shares his connection and dedication to the Alpha-1 Foundation and its […]
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Sharing Her Rare Disease Story: Betrice Coleman-Sweet
As the annual Rare Disease Day approaches, we reflect on the stories that often go untold, particularly those surrounding rare […]
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A1F Raises Alpha-1 Awareness Throughout February for Rare Disease Day
Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]
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The Alpha-1 Foundation Commemorates its 30th Anniversary
The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]
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December 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
