Cones for a Cure: Double Scoop of Fun & Fundraising!
The first annual Cones for a Cure Building Friends for a Cure (BFC) was help on Saturday, June 29, 2024, at the […]
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Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
The Alpha-1 Foundation Welcomes New Board Members
The Alpha-1 Foundation announces the selection of two new members of the board of directors, Erin Carr and Alice Turner, […]
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Jon Hagstrom selected for ATS Patient Advisory Roundtable (PAR)
The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is an essential part of the ATS structure. Comprised of CEOs […]
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Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program
Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy, On behalf of the […]
Saint Louis University Researchers Identify a Biomarker for Severe Liver Disease in Infants
ST. LOUIS — In a new study, Saint Louis University School of Medicine researchers and colleagues have identified biomarkers in […]
May 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Recent Publication on INBRX-101 in Journal of the COPD Foundation
Today, Volume 11, Issue 3 of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation (JCOPDF) was published online and included Recombinant Alpha-1 […]
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Alpha-1 Foundation recognizes 2024 Grants Award Recipients at ATS Reception
On Monday, May 20th over 160 attendees joined together in San Diego, California during the annual ATS International Conference to […]
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Building Friends for a Cure Walk in memory of Lorraine Cimino
On Saturday, May 19th, 2024 Mario Cimino together with friends and family organized a walk in memory of his late […]
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Celebrate Clinical Trials Day May 20, 2024
The Alphas in our community are what powers Alpha-1 research! In honor of Clinical Trials Day, help us find a […]
Happy 100th Birthday Dr. Gerard Turino!
The Alpha-1 Foundation honors Dr. Gerard Turino, a pulmonary trailblazer today, May 16th, 2024 on his 100th birthday! Gerard M. Turino, […]
March & April 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Grifols Celebrates 50th Anniversary of its Flagship Site
On April 18th, the Alpha-1 Foundation was proud to celebrate Grifols 50th anniversary of its flagship site in Clayton, NC. Grifols […]
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Raising Awareness on European Alpha-1 Awareness Day, April 25, 2024
April 25, 2024 marks the seventh annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]
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Study furthers understanding of lung regeneration
Researchers at Boston Medical Center (BMC) and Boston University (BU) announced findings from a new research study, detailing the development […]
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New Caps on Cost of Inhalers
President Biden on Wednesday will tout Democrats’ efforts to lower the cost of inhalers after drugmakers announced plans to cap […]
Building Friends for a Cure Training
The Alpha-1 Foundation was excited to convene a Building Friends for a Cure (BFC (Building Friends for a Cure)) Training […]
26th Gordon L. Snider Critical Issues Workshop
Pragmatic Solutions to Clinical Trial Endpoints for Lung Diseases in AATD, and AAT Variant Nomenclature The Alpha-1 Foundation was excited […]
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Alpha-1 Foundation Among 32 Organizations in Response to CMS Draft MP3 Guidance
March 15, 2024 Dr. Meena Seshamani Director, Center for Medicare Deputy Administrator, Centers for Medicare & Medicaid Services 7500 Security […]
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Happy St. Patrick’s Day from The Alpha- 1 Foundation
On this St. Patrick’s Day, we are lucky and grateful for the outstanding and unwavering commitment of the Alpha-1 community. […]
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Join us in Boston for the 16th Annual Celtic Connection
The 16th Annual Celtic Connection will take place this weekend on Saturday, March 9th in at the Newton Marriott in Boston, […]
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February 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Cassidy, Warner, Klobuchar Introduce Legislation to Create Easier Access to Supplemental Oxygen for Medicare Beneficiaries
WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]
Rare Disease Day: Reasons for Action
CSL Behring asked the leaders of patient advocacy groups – and CSL staff – to explain why rare conditions deserve […]
