The Celtic Connection 2026
Happy St. Patrick’s Day! The Alpha-1 Foundation has been celebrating St. Patrick’s Day as a community since 2008. Over 300 guests joined together […]
Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
2025 Alpha-1 Educational Scholarships
Each year the Alpha-1 Foundation (A1F) awards Alpha-1 Educational Scholarships to Alphas and family members seeking to further their higher […]
Alpha-1 antitrypsin deficiency: A persistently underrecognized condition
Dr. James K. Stoller, a nationally recognized leader in Alpha-1 Antitrypsin Deficiency (Alpha-1), has published a new article in the […]
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Redefining Endpoints Through Lived Experience: Jon Hagstrom’s Story of Patient Advocacy in Alpha-1 Antitrypsin Deficiency
A1F Board Chair Jon Hagstrom shares with the Critical Path Institute (C-Path) how his Alpha-1 journey is informing research and […]
RARE DISEASE DAY 2026
Every February, the rare disease community comes together with a shared purpose: to raise awareness, inspire action, and amplify the […]
February 2026 PubMed Articles
The Alpha-1 Foundation (A1F) is proud to provide a monthly list of articles from researchers that have been funded by […]
Medicare Drug Price Negotiation Program Engagement Opportunities
As you might have seen, CMS announced the next 15 drugs to go through the Medicare Drug Price Negotiation Program in late […]
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‘Substantially underdiagnosed’: Expert consensus moves to redefine rare liver disease
“The continuation of achieving our goals hinges on detecting, testing, finding and helping every Alpha. We have increased our efforts […]
FDA Launches Framework for Accelerating Development of Individualized Therapies for Ultra-Rare Diseases
FDA NEWS RELEASE The U.S. Food and Drug Administration today issued draft guidance for sponsors seeking approval for targeted individualized […]
Wave Life Sciences Announces Plans to Accelerate Regulatory Engagement with Full Control of WVE-006 for Alpha-1 Antitrypsin Deficiency
“We are thrilled with Wave Life Sciences commitment to the Alpha-1 patient community. Their acceleration of regulatory engagement of the […]
January 2026 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Tessera Therapeutics Announces FDA Clearance of IND Application for its Lead In Vivo Gene Editing Program TSRA-196 for AATD
PRESS RELEASE SOMERVILLE, Mass., January 12, 2026 /GLOBE NEWSWIRE/ Tessera Therapeutics, the biotechnology company pioneering a new approach in genetic […]
December 2025 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Alpha-1 Global Meeting held in Argentina
The second Latin American Alfa-1 Meeting titled “Consolidando avances, ampliando horizontes”, (“Consolidating Advances, Expanding Horizons”) was held on December 10, 2025, in Buenos Aires, Argentina. Organized by Alfa1 Argentina and supported by […]
Launch of the A1F Fred C. Walsh Speaker Bureau
Empowering Voices. Inspiring Action. Elevating Patient-Centered Work. […]
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Alpha-1 Foundation: Rationale for EU Strategic Engagement
A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]
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Kamada Announces Discontinuation of its Phase 3 Inhaled AAT Clinical Trial
“Thank you to the Alpha-1 patients that participated in this important clinical trial, InnovAATe. It is because of the dedication of patients […]
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University of Kentucky officially designated as a Clinical Resource Center (CRC) by A1F
Last month, the University of Kentucky was officially designated as a Clinical Resource Center (CRC) by the Alpha-1 Foundation. Alpha-1 […]
Alpha-1 Awareness Month: Week 5 Recap
The 30-day Alpha-1 Awareness Month campaign has been a tremendous success! This year celebrated the Alpha-1 Foundation’s (A1F) 30th anniversary, honoring […]
November PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The Alpha-1 community mourns the loss of Gordon E. Cadgwan Jr., PhD
Gordon Cadwgan, PhD passed away peacefully on Saturday, November 29, 2025, at 81 years old surrounded by his family. Gordon […]
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Alpha-1 Awareness Month: Week 4 Recap
This week showcased the heart, dedication, and spirit of the Alpha-1 community as everyone raised awareness; teams and supporters walked, […]
Alpha-1 EU Awareness Event
A1F’s role as the global leader among the world’s Alpha-1 community was highlighted recently at an Alpha-1 Awareness Month Recognition […]
A1F Virtual Walk – Week 3 Recap
Week 3 brought heartfelt stories, new beginnings, and meaningful moments from teams and walkers across the United States. Each walk and […]
