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Health insurance is changing …are you ready? Join us on Nov. 19 at 2 p.m. ET for a Zoom webinar […]
Read More… from NORD Webinar: Open Enrollment Essentials for Rare Disease Families
During COVID-19, Congress temporarily allowed Medicare to pay for telehealth visits much more broadly including visits at home, in cities […]
Read More… from Important things to know about telehealth as the government shutdown is ending
If you or someone you know has Medicare Advantage (MA) coverage, please take a few minutes to check what’s changing for 2026. […]
Read More… from Important Medicare Update for 2026 – Please Read!
It is with deep sadness that we share the news that AlphaNet Coordinator Lisa Riddle passed away on Monday, October […]
Read More… from Alpha-1 Community Mourns the loss of Lisa Riddle
More than 1.5 million Americans rely on supplemental oxygen to breathe. But right now, outdated Medicare rules and poor reimbursement […]
Read More… from Tell Congress: Support the SOAR Act and Fix Supplemental Oxygen Access
Alpha-1 Antitrypsin Deficiency (Alpha-1), a genetic condition that can lead to serious lung and liver disease, is featured in the […]
Read More… from Medical Stories Season Premiere Spotlights Alpha-1
Alpha-1 Foundation signs on with over 150 stakeholders, emphasizing the importance of telemedicine to Attorney General Pam Bondi. February 20, […]
Read More… from Letter to the Honorable Pam Bondi, Attorney General of the United States
Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]
Read More… from A1F Raises Alpha-1 Awareness Throughout February for Rare Disease Day
Full letter below: Dear Ms. Duran: We are writing to underscore the importance of the Centers for Medicare & Medicaid […]
Read More… from Alpha-1 Foundation signs-on to letter on Utilization Management in Medicare Part D
“The Power to Connect” has already joined the community for Alpha-1 Awareness in the first week in November! The enthusiasm […]
Read More… from 2024 Alpha-1 Awareness Month: Week 1 Highlights
The ERS International Congress 2024 is happening in Vienna, Austria, hosted by The European Respiratory Society (ERS). This is the largest […]
Celebrating 40 Years of the American Lung Association’s (ALA) Escape to the Cape and 28 Years of Partnership with the […]
Daniel Grimm spent decades as a certified professional driver of tractor-trailers, hauling loads up and down the East Coast. It […]
Read More… from Living well with Alpha-1: One man’s journey from truck driving to advocacy
