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Category: News

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April 1, 2020

Centers for Medicare & Medicaid Services Announcement on Home Infusions During COVID-19

For Immediate Release   April 1, 2020 -Alphas on Medicare have a new Choice! The Centers for Medicare and Medicaid […]

Read More… from Centers for Medicare & Medicaid Services Announcement on Home Infusions During COVID-19

March 30, 2020

APLUS Supports Plasma Donor Recognition & Home Infusion

March 24, 2020 The American Plasma Users Coalition (APLUS) appreciates the current efforts of your agency to protect public health […]

Read More… from APLUS Supports Plasma Donor Recognition & Home Infusion

March 30, 2020

BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)

In light of the Public Health Emergency concerning the coronavirus disease 2019 (COVID-19), the Office for Civil Rights (OCR) at […]

Read More… from BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)

March 27, 2020

Takeda- Our Coronavirus Efforts: Research & Development and COVID-19, Coronavirus Efforts & Update

As a global pharmaceutical leader, we are doing all we can to protect the health of our employees, their families […]

Read More… from Takeda- Our Coronavirus Efforts: Research & Development and COVID-19, Coronavirus Efforts & Update

March 27, 2020

Facing Dire Shortages, 50 Boston Collaborators Develop Their Own FDA-Approved Coronavirus Test

A team of more than 50 volunteers at the  Center for Regenerative Medicine (CReM) on Boston University’s Medical Campus, directed by Alpha doctor, […]

Read More… from Facing Dire Shortages, 50 Boston Collaborators Develop Their Own FDA-Approved Coronavirus Test

March 26, 2020

CARES ACT Bill (S.3548) passed by The Senate

March 26, 2020 Early this morning, the Senate passed a $2 trillion COVID-19 relief bill.  The Bill (S. 3548) is […]

Read More… from CARES ACT Bill (S.3548) passed by The Senate

March 26, 2020

Grifols Announces Formal Collaboration with US Government to Produce the First Treatment Specifically Targeting COVID-19

Barcelona, March 25, 2020 – Grifols today announces that it has entered into a formal collaboration with the United States […]

Read More… from Grifols Announces Formal Collaboration with US Government to Produce the First Treatment Specifically Targeting COVID-19

March 25, 2020

Coronavirus: Alpha 1 Group Gives Specific Guidance for Patients

Because of COVID-19’s impacts on the lungs, the U.S. Alpha-1 Foundation has provided detailed, specific guidance for patients who have alpha […]

Read More… from Coronavirus: Alpha 1 Group Gives Specific Guidance for Patients

March 24, 2020

US COPD Coalition Member Organizations Seek Waiver to Allow Expanded Access to Respiratory Therapists During Pandemic

This coalition waiver request adds three additional options for physicians and home health agencies as they endeavor to keep those with […]

Read More… from US COPD Coalition Member Organizations Seek Waiver to Allow Expanded Access to Respiratory Therapists During Pandemic

March 19, 2020

COVID-19: CSL continues to provide medicines to patients around the world.

CSL continues to provide medicines to patients around the world. Safeguarding our people, patients and donors remains our top priority. […]

Read More… from COVID-19: CSL continues to provide medicines to patients around the world.

March 18, 2020

WEDNESDAY, MARCH 18 COVID-19 Update from the Alpha-1 Foundation & AlphaNet

STATEMENT UPDATED: March 18, 2020  It is our commitment to provide you with updated guidelines on COVID-19, please find the […]

Read More… from WEDNESDAY, MARCH 18 COVID-19 Update from the Alpha-1 Foundation & AlphaNet

March 17, 2020

The FDA has granted Emergency Use Authorization for two commercially developed coronavirus tests– providing fast results within 4 hours.

Shortly after the FDA granted an Emergency Use Authorization to its first commercially developed coronavirus test—developed by Roche for use […]

Read More… from The FDA has granted Emergency Use Authorization for two commercially developed coronavirus tests– providing fast results within 4 hours.

March 17, 2020

NBCNews.com Article: As Coronavirus Spreads, Immunocompromised Young People Ask Peers to Keep Them In Mind

For many immunocompromised people, social distancing isn’t a new endeavor. Alpha-1 Antitrypsin Deficiency is sometimes called an “invisible disability”. This […]

Read More… from NBCNews.com Article: As Coronavirus Spreads, Immunocompromised Young People Ask Peers to Keep Them In Mind

March 12, 2020

THURSDAY, MARCH 12 COVID-19 Update from the Alpha-1 Foundation & AlphaNet

STATEMENT UPDATED: March 12, 2020  Please note, this statement is specific to the United States.  If you are an individual […]

Read More… from THURSDAY, MARCH 12 COVID-19 Update from the Alpha-1 Foundation & AlphaNet

March 9, 2020

COVID-19 Update from the Alpha-1 Foundation & AlphaNet

STATEMENT UPDATED: March 9, 2020  Please note, this statement is specific to the United States. If you are an individual […]

Read More… from COVID-19 Update from the Alpha-1 Foundation & AlphaNet

March 9, 2020

Grifols Update Regarding the Novel Coronavirus

As the situation with the novel coronavirus rapidly evolves, we wanted to inform you that Grifols is taking measures in […]

Read More… from Grifols Update Regarding the Novel Coronavirus

March 4, 2020

Don’t be green with envy… Join us this Saturday for the 2020 Celtic Connection

March 4, 2020- The 2020 Celtic Connection will take place this Saturday, March 7th at the Boston Marriott Newton to […]

Read More… from Don’t be green with envy… Join us this Saturday for the 2020 Celtic Connection

March 2, 2020

Update on 2019 novel coronavirus from the Alpha-1 Foundation & AlphaNet

STATEMENT UPDATED: March 2, 2020 The current outbreak of 2019 novel coronavirus (COVID-19) was first identified in China but has […]

Read More… from Update on 2019 novel coronavirus from the Alpha-1 Foundation & AlphaNet

February 28, 2020

Rare Disease Day 2020

WHO: The Alpha-1 Community!  Every Alpha, family member, caregiver, friend, healthcare professional researcher and industry member can participate. The Alpha-1 […]

Read More… from Rare Disease Day 2020

February 25, 2020

Are You Informed: Clinical Trials

https://www.alpha1.org/alphas-friends-family/resources/clinical-trials/ A clinical trial is a research study in which one or more human subjects are prospectively assigned to one […]

Read More… from Are You Informed: Clinical Trials

February 3, 2020

2019 Novel Coronavirus (2019-nCoV) and Plasma Protein Therapies

Recent international reports have highlighted the emergence of a new coronavirus in Wuhan, Hubei Province, China. The 2019 Novel Coronavirus […]

Read More… from 2019 Novel Coronavirus (2019-nCoV) and Plasma Protein Therapies

January 31, 2020

The Alpha-1 Foundation celebrates its 25th anniversary

Miami, January 31, 2020 – The Alpha-1 Foundation is proud to celebrate its 25th Anniversary. On January 31, 1995, the […]

Read More… from The Alpha-1 Foundation celebrates its 25th anniversary

January 29, 2020

Grifols’s Prolastina approved for use in Denmark

The Alpha-1 Foundation is proud to report that multinational pharmaceutical manufacturer Grifols also received approval by the Danish Medicines Council […]

Read More… from Grifols’s Prolastina approved for use in Denmark

January 24, 2020

CSL Behring’s Respreeza gains approval in Denmark

Blood products and vaccines specialist CSL Behring announced that the Danish Medicines Council has published its final decision, approving human […]

Read More… from CSL Behring’s Respreeza gains approval in Denmark

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