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Category: News

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December 6, 2024

Alpha-1 Foundation signs onto community support letter for the Rare Pediatric PRV Program

December 4, 2024 The Honorable Chuck SchumerMajority LeaderUnited States Senate322 Hart Senate Office BuildingWashington, D.C. 20510 The Honorable Mitch McConnellMinority […]

Read More… from Alpha-1 Foundation signs onto community support letter for the Rare Pediatric PRV Program

December 6, 2024

27th Gordon L. Snider (GLS) Critical Issues Workshop

Experimental Models of Alpha-1 Antitrypsin Deficiency Lung and Liver Disease The Alpha-1 Foundation joined with researchers, clinicians and industry partners […]

Read More… from 27th Gordon L. Snider (GLS) Critical Issues Workshop

December 2, 2024

AlphaNet Honors Past Chair Robert L. Greene, Jr. with $100,000 Donation to Alpha-1 Foundation

In recognition of his dedicated service to our Board and Alpha-1 Community, AlphaNet is proud to honor Immediate Past Chair […]

Read More… from AlphaNet Honors Past Chair Robert L. Greene, Jr. with $100,000 Donation to Alpha-1 Foundation

November 25, 2024

Foundation for Sarcoidosis Research (FSR) receives confirmation from the Department of Labor (DOL) ensuring patient access to FMLA for participation in clinical trials

FSR’s survey and focus group discussions revealed that a significant barrier to patients participating in clinical trials relates to concerns […]

Read More… from Foundation for Sarcoidosis Research (FSR) receives confirmation from the Department of Labor (DOL) ensuring patient access to FMLA for participation in clinical trials

November 21, 2024

Korro Receives Australian HREC Approval and CTN Clearance to Initiate Phase 1/2a Clinical Study (REWRITE) of KRRO-110 for Alpha-1 Antitrypsin Deficiency

Key takeaways from today’s press release include: CAMBRIDGE, Mass., Nov. 21, 2024 (GLOBE NEWSWIRE) — Korro Bio, Inc. (Korro) (Nasdaq: […]

Read More… from Korro Receives Australian HREC Approval and CTN Clearance to Initiate Phase 1/2a Clinical Study (REWRITE) of KRRO-110 for Alpha-1 Antitrypsin Deficiency

November 20, 2024

2024 Alpha-1 Awareness Month: Week 3 Highlights

Through the power of connection and collaborations, A1F is building a more informed and empowered Alpha-1 community. These efforts drive […]

Read More… from 2024 Alpha-1 Awareness Month: Week 3 Highlights

November 19, 2024

Patty Tew shares her Alpha-1 story in the Orlando Sentinel

Take a deep breath. Feels good, doesn’t it? Now imagine if that breath felt like sucking air through a tiny […]

Read More… from Patty Tew shares her Alpha-1 story in the Orlando Sentinel

November 13, 2024

2024 Alpha-1 Awareness Month: Week 2 Highlights

“The Power to Connect” continues to energize the entire Alpha-1 community during the second week of Alpha-1 Awareness month! The enthusiasm […]

Read More… from 2024 Alpha-1 Awareness Month: Week 2 Highlights

November 13, 2024

2025 Medicare Parts A & B Premiums and Deductibles

On November 8, 2024, the Centers for Medicare & Medicaid Services (CMS) released the 2025 premiums, deductibles, and coinsurance amounts […]

Read More… from 2025 Medicare Parts A & B Premiums and Deductibles

November 4, 2024

October 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from October 2024 PubMed Articles

November 1, 2024

COVID-19 Update for the Alpha-1 Community

November 1, 2024 Vaccines remain the best public health measure to protect people from COVID-19; slow transmission; and reduce the likelihood of […]

Read More… from COVID-19 Update for the Alpha-1 Community

October 31, 2024

“The Power to Connect”: November is Alpha-1 Awareness Month! 

Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency […]

Read More… from “The Power to Connect”: November is Alpha-1 Awareness Month! 

October 17, 2024

Statement of A1F to the FDA on the Need for New Therapies for Alpha-1

Docket No. FDA-2024-N-3528 Advancing Rare Disease Therapies Through a Food and Drug Administration Rare Disease Innovation Hub; Public Meeting; Request […]

Read More… from Statement of A1F to the FDA on the Need for New Therapies for Alpha-1

October 11, 2024

FDA Authorizes Marketing of First Home Flu and COVID-19 Combination Test Outside of Emergency Use Authorities

Today, the U.S. Food and Drug Administration granted marketing authorization for the Healgen Rapid Check COVID-19/Flu A&B Antigen Test. The […]

Read More… from FDA Authorizes Marketing of First Home Flu and COVID-19 Combination Test Outside of Emergency Use Authorities

October 7, 2024

Raising Awareness One Race at a Time

Michael Allen, Alpha and Support Group Co-Leader from Schenectady, New York continues his virtual fundraising campaign in 2024. The Alpha-1 […]

Read More… from Raising Awareness One Race at a Time

October 7, 2024

MassAlpha Support Group Thanks Plasma Donors

Photo (left to right): Judy Thomas, Karin Pittsley, Liz Chase, Lori Mitcheroney, Liz Reid, Joyce Croci, Michaela Perry On Saturday, […]

Read More… from MassAlpha Support Group Thanks Plasma Donors

October 4, 2024

In memory of Fred Walsh, beloved Alpha and Friend

It is with great sadness that we share the news that Alpha-1 community leader Fred Walsh passed away peacefully on […]

Read More… from In memory of Fred Walsh, beloved Alpha and Friend

October 3, 2024

September 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from September 2024 PubMed Articles

October 2, 2024

Recognizing World Oxygen Day, October 2, 2024

World Oxygen Day celebrates everyone who benefits from oxygen therapy. From babies to adults, millions of people rely on oxygen […]

Read More… from Recognizing World Oxygen Day, October 2, 2024

September 30, 2024

Alpha-1 Foundation Mourns the Loss of Fred Walsh

Dear Alpha-1 Community, It is with great sadness and heavy hearts that we share with you the passing of Fred […]

Read More… from Alpha-1 Foundation Mourns the Loss of Fred Walsh

September 19, 2024

New Medicare Prescription Payment Plan – A Patient’s Guide

Medicare patients in the Part D prescription drug program often face significant out-of-pocket costs early in the year while trying […]

Read More… from New Medicare Prescription Payment Plan – A Patient’s Guide

September 10, 2024

August 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from August 2024 PubMed Articles

August 26, 2024

Inhaled alpha-1-antitrypsin (AAT) restores lower respiratory tract protease- antiprotease homeostasis and reduces inflammation in AAT-deficient individuals: A randomized phase 2 study 

Mark Brantly1, James Stocks2, Jorge Lascano1, Tammy Flagg1, Ann M. Jeffers2, Shuzi Z. Owens2, Torry A. Tucker2, Megan Devine2 Noga […]

Read More… from Inhaled alpha-1-antitrypsin (AAT) restores lower respiratory tract protease- antiprotease homeostasis and reduces inflammation in AAT-deficient individuals: A randomized phase 2 study 

August 14, 2024

July 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from July 2024 PubMed Articles

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