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“Curts was an active member of the Alpha-1 Foundation’s development committee for nearly 10 years. His diagnosis with Alpha-1 empowered […]
Read More… from Alpha-1 Foundation remembers Alpha A. Curts Cooke
The Alpha-1 Foundation is proud to announce the appointment of Catherine Vernon to the Alpha-1 Foundation Board of Directors. Catherine […]
Read More… from Catherine Vernon Appointed to Alpha-1 Foundation Board of Directors
The US government will once again extend the Covid-19 public health emergency, continuing measures that have given millions of Americans […]
Read More… from Biden Administration to Again Extend the Covid Public-Health Emergency
“We are proud of the investment Alpha-1 Foundation has made over the years of the work being done by Dr. […]
The Alpha-1 Foundation is proud to share this inspiring story and great accomplishment, submitted by Andrew Irvine, a fellow Alpha […]
Read More… from No Horses Needed; An Alpha on the US Men’s Kayak Polo Team!
In honor of the late Ab Rees’ extraordinary contributions to the Alpha-1 community, AlphaNet is proud to donate $200,000 to […]
FOR IMMEDIATE RELEASE The Alpha-1 Foundation announces the selection of Mr. Jon Hagstrom as the new Chair of the Alpha-1 […]
Read More… from Announcing the New Chair of the Alpha-1 Foundation Board of Directors
NEW YORK TIMES June 18, 2022- The Centers for Disease Control and Prevention on Saturday recommended Covid vaccines for children […]
Read More… from CDC Recommends 2 COVID Vaccines for Very Young Children
June 11, 2022- Thank you to CSL Behring for opening day four with World-Class Professional Magician, Harrison Kramer and his truly interactive virtual […]
June 10, 2022- Today, we launched our hybrid event model combining the in-person events in Miami, Florida and New York […]
June 9, 2022- Day two of the Hybrid Alpha-1 National Conference was a great day of interaction, education and community! […]
Read More… from Day 2 Recap of the 2022 Hybrid Alpha-1 National Conference
June 8, 2022- Today kicked off the first day of the 2022 Hybrid Alpha-1 National Conference. We were joined by […]
Read More… from 2022 Hybrid Alpha-1 National Conference: Day One Recap
May 24, Hartford, CT – Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions […]
Read More… from Connecticut Establishes a Permanent Rare Disease Advisory Council
The American Thoracic Society International Conference annually convenes pulmonary experts from around the world to learn about the latest advances […]
Read More… from 2022 American Thoracic Society International Conference
The Alpha-1 Foundation signed on with nearly 400 organizations and institutions that signed on to the Ad Hoc Group’s FY […]
Read More… from The Ad Hoc Group Fiscal Year 2023 Recommendation
The American Thoracic Society produces the ATS Patient Education Series as a resource for patients, families and caregivers. The attached […]
Read More… from ATS Patient Education: Information Series- MZ Alpha-1 Antitrypsin Deficiency
It is hard to imagine that it has been two years since our lives changed completely due to the onset […]
In anticipation of the 2022 European Alpha-1 Awareness Day on Monday, 25 April 2022, Alpha-1 Global hosted the Improving Care […]
Read More… from 2022 Improving Care for Alpha-1 Patients Global Webinar
It is with great sadness that we share the news that Ab Rees passed away on April 14, 2022. Ab […]
Read More… from The Alpha- 1 Community Mourns the Loss of Ab Rees
April 12, 2022– The Alpha-1 Foundation congratulates the Haystack Project on the Senate introduction of H.R. 6888- Helping Experts Accelerate […]
April 8, 2022- Important COVID-19 Omicron Variant Update At the beginning of 2022 an Omicron variant caused a surge in […]
Read More… from Updated COVID Guidance & Recommendations for Alphas
On Monday, April 4, 2022, the Alpha-1 community came together on a Zoom reception call to kick-off the Spring 2022 […]
THE FLORIDIAN April 1, 2022- Florida Rep. Maria Elvira Salazar (R), working alongside Minnesota Rep. Chellie Pingree (D), has introduced […]
Read More… from The Floridian: Elvira Salazar, Pingree Tackle Alpha-1 Home Infusion Act
FOR IMMEDIATE RELEASE –Today, April 1, 2022, H.R. 7346: John W. Walsh Home Infusion Act will be introduced. This legislation, […]
