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June 10, 2022- Today, we launched our hybrid event model combining the in-person events in Miami, Florida and New York […]
June 9, 2022- Day two of the Hybrid Alpha-1 National Conference was a great day of interaction, education and community! […]
Read More… from Day 2 Recap of the 2022 Hybrid Alpha-1 National Conference
June 8, 2022- Today kicked off the first day of the 2022 Hybrid Alpha-1 National Conference. We were joined by […]
Read More… from 2022 Hybrid Alpha-1 National Conference: Day One Recap
May 24, Hartford, CT – Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions […]
Read More… from Connecticut Establishes a Permanent Rare Disease Advisory Council
The American Thoracic Society International Conference annually convenes pulmonary experts from around the world to learn about the latest advances […]
Read More… from 2022 American Thoracic Society International Conference
The Alpha-1 Foundation signed on with nearly 400 organizations and institutions that signed on to the Ad Hoc Group’s FY […]
Read More… from The Ad Hoc Group Fiscal Year 2023 Recommendation
The American Thoracic Society produces the ATS Patient Education Series as a resource for patients, families and caregivers. The attached […]
Read More… from ATS Patient Education: Information Series- MZ Alpha-1 Antitrypsin Deficiency
It is hard to imagine that it has been two years since our lives changed completely due to the onset […]
In anticipation of the 2022 European Alpha-1 Awareness Day on Monday, 25 April 2022, Alpha-1 Global hosted the Improving Care […]
Read More… from 2022 Improving Care for Alpha-1 Patients Global Webinar
It is with great sadness that we share the news that Ab Rees passed away on April 14, 2022. Ab […]
Read More… from The Alpha- 1 Community Mourns the Loss of Ab Rees
April 12, 2022– The Alpha-1 Foundation congratulates the Haystack Project on the Senate introduction of H.R. 6888- Helping Experts Accelerate […]
April 8, 2022- Important COVID-19 Omicron Variant Update At the beginning of 2022 an Omicron variant caused a surge in […]
Read More… from Updated COVID Guidance & Recommendations for Alphas
On Monday, April 4, 2022, the Alpha-1 community came together on a Zoom reception call to kick-off the Spring 2022 […]
THE FLORIDIAN April 1, 2022- Florida Rep. Maria Elvira Salazar (R), working alongside Minnesota Rep. Chellie Pingree (D), has introduced […]
Read More… from The Floridian: Elvira Salazar, Pingree Tackle Alpha-1 Home Infusion Act
FOR IMMEDIATE RELEASE –Today, April 1, 2022, H.R. 7346: John W. Walsh Home Infusion Act will be introduced. This legislation, […]
Washington, D.C. – Today, Congresswomen Maria Elvira Salazar (FL-27) and Chellie Pingree (ME-1) introduced the John W. Walsh Alpha-1 Home […]
Over 16 million people in the US have COPD and up to 60% go undiagnosed. COPD is the third leading […]
The 14th Annual Celtic Connection took place virtually on Saturday, March 5th. The event committee joined together this year to […]
The Alpha-1 Foundation kicked off its educational series for 2022 with the Alpha-1 Education Day on Saturday, February 12, 2022. […]
The following article was published by News Channel 5 Nashville. To access the original article, please click here. NASHVILLE, Tenn. […]
Read More… from Tennessee Donor Services launches #BeTheGift Challenge to register more organ donors
The following information was published in the New York Times. To access the full article, please click here. Even as […]
February 11, 2022 The Honorable Nancy Pelosi Speaker U.S. House of Representatives Washington, DC 20515 The Honorable Charles Schumer Majority […]
“The Alpha-1 Foundation is pleased with the recent developments that have come to fruition, this is exciting and significant news […]
Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update, Approval of Thermo Fisher
Missed the COVID-19 Omicron Update Webinar? Watch the webinar now on-demand to hear the answers of frequently asked questions relating […]
