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The following information was published in the New York Times. To access the full article, please click here. Even as […]
February 11, 2022 The Honorable Nancy Pelosi Speaker U.S. House of Representatives Washington, DC 20515 The Honorable Charles Schumer Majority […]
“The Alpha-1 Foundation is pleased with the recent developments that have come to fruition, this is exciting and significant news […]
Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update, Approval of Thermo Fisher
Missed the COVID-19 Omicron Update Webinar? Watch the webinar now on-demand to hear the answers of frequently asked questions relating […]
Today, the U.S. Food and Drug Administration approved a second COVID-19 vaccine. The vaccine has been known as the Moderna […]
Read More… from FDA Takes Key Action by Approving Second COVID-19 Vaccine
“Our industry partners at CSL Behring are keeping in close contact with us regarding updates for the Alpha-1 community. The […]
Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update
By Robert A. Sandhaus, MD, PhD, FCCP and Bruce C. Trapnell, MD Previously, we discussed vaccination against SARS-2 CoV, the […]
Read More… from History of Vaccines & Update on COVID-19 Vaccination
TESTING There is no one recommendation for testing children for Alpha-1. This is a question that should be answered with […]
Background: Parents of children with rare diseases often face uncertainty about diagnosis, treatment, and costs associated with healthcare for their […]
As we look forward to a promising 2022, President and CEO of the Alpha-1 Foundation, Scott Santarella shares his vision […]
The Alpha-1 Foundation has created a detailed guideline of criteria that will be used to determine Foundation event activities in […]
Read More… from Alpha-1 Foundation Unveils COVID-19 Event Grid for 2022 Events
December 29, 2021- Important COVID-19 Omicron Variant Update for Alphas While Omicron may be mild in patients without lung disease, […]
Read More… from Important COVID-19 Omicron Variant Update for Alphas
“On behalf of Alpha-1 patients and families, we applaud Grifols for this incredible milestone of 1 million screenings through their […]
Read More… from Grifols Hits Milestone of Screening One Million Patients for Alpha-1
Today, the U.S. Food and Drug Administration issued an emergency use authorization (EUA) for Pfizer’s Paxlovid (nirmatrelvir tablets and ritonavir tablets, co-packaged […]
Emergence of Omicron CDC has been collaborating with global public health and industry partners to learn about Omicron, as we […]
Read More… from Updated COVID-19 Guidance & Recommendations for Alphas regarding the Omicron Variant
On behalf of the estimated 50 million Americans with autoimmune and immune-mediated diseases, the undersigned 64 organizations write to you […]
The Alpha-1 Foundation congratulates Haystack Project for their success in getting the Access to Rare Indications Act introduced yesterday, led […]
December 6, 2021 The Honorable Janet Yellen Secretary U.S. Department of the Treasury 1500 Pennsylvania Ave, NW Washington, DC 20220 […]
Read More… from Organizations Submit Comments on Surprise Medical Billing
November 29, 2021 The Honorable A. Donald McEachin (D-VA) House of Representatives Washington, DC 20515 The Honorable Rodney Davis (R-IL) […]
November 30th marked the last day of Alpha-1 Awareness Month and this year was the most successful to date! WHAT A […]
The Alpha-1 Foundation hosted the virtual 23rd Gordon L. Snider Critical Issues Workshop entitled Liver Biomarkers and the Path to […]
Read More… from 23rd Gordon L. Snider Critical Issues Workshop
November 23, 2021- To stabilize future ZEMAIRA supply, CSL Behring has been evaluating long-term enhancements to our manufacturing capabilities including […]
Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update
As Thanksgiving quickly approaches, family and friends are gathering from across the country to support one cause: Alpha-1! The Alpha-1 […]
November 15th marked the halfway point of 2021 Alpha-1 Awareness Month and this year’s campaign shows no signs of slowing […]
