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Top Stories

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May 11, 2023

Grifols launches AlphaID at Home, enabling U.S. consumers to self-screen for genetic COPD

Now available in the U.S., this free, innovative genetic health risk service lets consumers screen for their risk of alpha1-antitrypsin […]

Read More… from Grifols launches AlphaID at Home, enabling U.S. consumers to self-screen for genetic COPD

April 27, 2023

Exciting improvements are coming to Accessia Health patient assistance!

Every year, Accessia Health works to ensure we are optimizing our program offerings to best serve the needs of our […]

Read More… from Exciting improvements are coming to Accessia Health patient assistance!

April 26, 2023

Thursday, April 27th: Free CME Livestream on AATD

Join the Alpha-1 Foundation for a free, live Continuing Medical Education (CME) event in partnership with Cleveland Clinic and Medscape […]

Read More… from Thursday, April 27th: Free CME Livestream on AATD

researcher looking at microscope in lab
April 24, 2023

What you need to know about Clinical Trials

Clinical trials are an important part of clinical research and at the heart of all medical advances. Without them, we […]

Read More… from What you need to know about Clinical Trials

adult holding hand in the air in victory and wearing a medal around their neck
April 20, 2023

The Alpha-1 Community Mourns the loss of Alpha, Sheila Favazza

SOUTH HAMILTON – Sheila L. Favazza, 75, of Forest Street, died Saturday, April 15, 2023, in the Brigham and Women’s […]

Read More… from The Alpha-1 Community Mourns the loss of Alpha, Sheila Favazza

April 6, 2023

The 2023 Alpha-1 Global 5th International Research Conference & the 8th Patient Congress begin April 13th

FOR IMMEDIATE RELEASE April 6, 2023 – The Alpha-1 Global 5th International Research Conference and the 8th Patient Congress will […]

Read More… from The 2023 Alpha-1 Global 5th International Research Conference & the 8th Patient Congress begin April 13th

two people wearing bicycle helmets and once person wearing oxygen posing for a photo
April 3, 2023

Alpha, Mary Pierce celebrates 30-year anniversary of lung transplant

“Mary has been an incredible role model in our Alpha-1 community, we wish her continued good health in her retirement. […]

Read More… from Alpha, Mary Pierce celebrates 30-year anniversary of lung transplant

March 21, 2023

NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA)

The Fiscal Years 2023–2027 NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA) (the Plan) articulates NIH’s commitment to embracing, strengthening, […]

Read More… from NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA)

speaker in a suit holding a microphone and smiling
March 17, 2023

Celtic Connection honors Dr. James K. Stoller with Shillelagh Award

On this St. Patrick’s Day, we are lucky and grateful for the outstanding commitment of the Alpha-1 community. Over 235 […]

Read More… from Celtic Connection honors Dr. James K. Stoller with Shillelagh Award

March 15, 2023

Nationwide Albuterol Shortage: What you need to know

We are writing to let you know that there is a nationwide shortage of albuterol. Albuterol is used to treat […]

Read More… from Nationwide Albuterol Shortage: What you need to know

March 8, 2023

Get ready for the 2023 Celtic Connection- Saturday, March 11th

The 14th Annual Celtic Connection will take place this weekend on Saturday, March 11th in Boston, Massachusetts. For the first time […]

Read More… from Get ready for the 2023 Celtic Connection- Saturday, March 11th

February 28, 2023

Today is Rare Disease Day!

Today, the Alpha-1 Foundation – along with Alphas, patient organizations, politicians, caregivers, medical professionals, researchers, and industry- will come together […]

Read More… from Today is Rare Disease Day!

February 17, 2023

CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD

Rare diseases pose particular challenges to patients who are affected, to the clinicians who care for them, and to the […]

Read More… from CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD

February 13, 2023

Increase Alpha-1 Awareness on Rare Disease Day 2023

Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]

Read More… from Increase Alpha-1 Awareness on Rare Disease Day 2023

February 13, 2023

Patient Community Healthcare Priorities for the 118th Congress

February 13, 2021 The Honorable Charles Schumer                            […]

Read More… from Patient Community Healthcare Priorities for the 118th Congress

February 10, 2023

Department of Health & Human Services Releases Initial Guidance for Medicare Prescription Drug Inflation Rebate Program

Under President Biden’s prescription drug law, drug companies will pay rebates to the federal government for raising prescription drug prices […]

Read More… from Department of Health & Human Services Releases Initial Guidance for Medicare Prescription Drug Inflation Rebate Program

February 7, 2023

Respiratory Research Volume 24 Article No. 40: Lung Inflammation in alpha-1-antitrypsin deficient individuals with normal lung function

NHLBI funded research shows alpha-1-antitrypsin deficient (AATD) individuals with normal lung function have lower respiratory tract mild inflammation. More research […]

Read More… from Respiratory Research Volume 24 Article No. 40: Lung Inflammation in alpha-1-antitrypsin deficient individuals with normal lung function

February 6, 2023

The Alpha-1 Foundation mourns the loss of Dr. James Gadek

James E. Gadek, 76, passed away on January 24, 2023. He was born in Elizabeth, New Jersey on September 23, […]

Read More… from The Alpha-1 Foundation mourns the loss of Dr. James Gadek

January 19, 2023

Protect Yourself Against Health Insurance Fraud

The Alpha-1 Foundation wants you to have the knowledge to protect yourself and your family against health insurance fraud and […]

Read More… from Protect Yourself Against Health Insurance Fraud

January 12, 2023

Alpha-1 Foundation partners with The Cleveland Clinic on New Continuing Medical Education Series

Designed to advance the knowledge and improve the diagnostic and treatment competence of healthcare providers caring for patients with Alpha-1. […]

Read More… from Alpha-1 Foundation partners with The Cleveland Clinic on New Continuing Medical Education Series

speaker standing at podium featuring Alpha-1 Foundation logo
January 11, 2023

Dr. Jeffrey Teckman’s Liver Research Video Feature

The Science of Healing: Alpha-1 Antitrypsin Deficiency Alpha-1 Foundation research grant funding has supported his work to better understand the […]

Read More… from Dr. Jeffrey Teckman’s Liver Research Video Feature

January 9, 2023

Winter Wellness by Dr. Robert Sandhaus

Winter Wellness by Dr. Robert A. Sandhaus Featured in Alpha-1-to-One Magazine: Ask the Alpha Doc Winter 2022 Q: Should I […]

Read More… from Winter Wellness by Dr. Robert Sandhaus

January 4, 2023

Conference of Deputy Ministers of Health authorized Canadian Blood Services to issue a request for proposals (RFP) for Health Canada-approved A1-PI products

On December 23, 2022, Alpha-1 Canada was informed that the Conference of Deputy Ministers of Health authorized Canadian Blood Services […]

Read More… from Conference of Deputy Ministers of Health authorized Canadian Blood Services to issue a request for proposals (RFP) for Health Canada-approved A1-PI products

December 21, 2022

CSL Behring: Looking Back at 2022

CSL Behring asked leaders in patient advocacy to share examples of creativity and innovation in 2022. Learn what they’re most […]

Read More… from CSL Behring: Looking Back at 2022

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