Professor Gerry McElvaney, Professor of Medicine at RCSI University of Medicine and Health Sciences, has been awarded the HRB Impact […]
Read More… from Professor Gerry McElvaney wins HRB Impact Award 2021
The annual Celtic Connection will take place virtually on ZOOM on Saturday, March 13, 2021. The evening will begin at […]
Read More… from Join us for the 2021 Celtic Connection from home!
The Alpha-1 Foundation hosted the virtual 21st Gordon L. Snider Critical Issues Workshop entitled, Exacerbations and Pulmonary Comorbidities on Friday, […]
Read More… from Alpha-1 Foundation Hosted 21st Gordon L. Snider Critical Issues Workshop
CSL Behring has reported to the Alpha-1 Foundation that the distribution hold on their inventory has been lifted and they […]
Read More… from UPDATE February 2, 2021: ZEMAIRA® Alpha‐1 Proteinase Inhibitor (Human) Update
PPTA Statement on Immunoglobulin Use to Meet Clinical Need A recent publication explores possible reasons for the increased use of […]
January 29, 2020- The Alpha-1 Foundation is excited to host the two- day virtual 21st Gordon L. Snider Critical Issues […]
Read More… from 21st Gordon L. Snider Critical Issues Workshop “Exacerbations and Comorbidities”
Excessive Phlegm May Be a Sign of Alpha-1 Antitrypsin Deficiency If your body produces an excessive amount of phlegm on […]
Summary of major changes: Beginning two weeks after the second dose of a two dose vaccine, it will not be […]
January 21, 2021- We have become aware today of this voluntary Class II recall from CSL Behring. Please see full […]
Read More… from ZEMAIRA Alpha-1 Proteinase Inhibitor (Human) Update
January 21, 2021 President Joseph Biden 1600 Pennsylvania Ave., NW Washington, DC 20500 Dear President Biden, We, the undersigned patient […]
January 22, 2021 CDC Advisory Committee on Immunization Practices [Docket No. CDC–2021–0002] Federal Register RE: Individuals with Alpha-1 Antitrypsin Deficiency […]
It is with great sadness that we share the news that long-time AlphaNet Coordinator Darrell Nall passed away on Sunday, January 17th […]
Read More… from The Alpha-1 Community Mourns the Loss of Darrell Nall
The Alpha-1 Foundation has created a letter template for Alpha-1 patients to qualify for early immunization against COVID-19. The Centers […]
It is with great sadness that we share the news that Karen L. Fraser passed away on January 2, 2021. […]
Read More… from The Alpha-1 Community Mourns the loss of Karen L. Fraser
Shortness of Breath May Be a Sign of Alpha-1 Antitrypsin Deficiency Learn More About Alpha-1: here FB Ad: https://www.alpha1.org/Alpha1/wp-content/uploads/2021/01/FB-Ad.png If […]
https://www.nbcconnecticut.com/news/sports/hiking-for-a-cure-boltons-jonathan-maidment-completes-the-triple-crown/2393994/?fbclid=IwAR0xrMx0SXiasTaR2wig3psrNf__2ncTJBWHkE35tXb6_2DQwoStjBeBER4 Jonathan Maidment wasn’t much of a hiker. “I was always the slow guy,” said Maidment. “The guy that everyone […]
December 22, 2020 – The Ad Hoc Group for Medical Research issued the following statement in response to funding included […]
Read More… from Ad Hoc Group Statement on NIH Funding in Year-End Legislation
Monday, December 21 Congress Reaches an Agreement on COVID-19 Relief Bill and Surprise Medical Billing COVID Relief Package Over the weekend, […]
December 12, 2020 The Alpha-1 Foundation hosted the virtual 20th Gordon L. Snider Critical Issues Workshop entitled, The Promise of […]
The CARES (Coronavirus Aid, Relief, and Economic Security) Act is designed to help you, businesses and nonprofits facing economic hardship […]
Workshops, such as today’s 20th Gordon L. Snider Critical Issues Workshop titled “The Promise of Gene-based Interventions of Alpha-1 Antitrypsin […]
November Alpha-1 Awareness month successfully obtained its goal and raised awareness for Alpha-1 Antitrypsin Deficiency around the United States. November […]
Read More… from A Look Back at the 2020 November Virtual Alpha-1 Awareness Month
The Alpha-1 Foundation held its first ever Virtual Alpha-1 Lobby Day on Tuesday, November 17, 2020 in order to bring […]
December 4, 2020 The Honorable Joseph R. Biden, Jr. President-elect 1401 Constitution Ave. NW Washington, DC 20230 Dear President-elect Biden: […]
Read More… from Ad Hoc Group for Medical Research Letter to President-elect Joe Biden
