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Author: Alpha-1 Foundation

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Posts by Alpha-1 Foundation

Matsui Introduces Bipartisan Legislation to Support Access to Evidence-based Care for Rare Disease Patients

Posted on December 8, 2021 (August 7, 2023)

The Alpha-1 Foundation congratulates Haystack Project for their success in getting the Access to Rare Indications Act introduced yesterday, led […]

Read More… from Matsui Introduces Bipartisan Legislation to Support Access to Evidence-based Care for Rare Disease Patients

Posted in News

Organizations Submit Comments on Surprise Medical Billing

Posted on December 6, 2021 (May 8, 2024)

December 6, 2021 The Honorable Janet Yellen Secretary U.S. Department of the Treasury 1500 Pennsylvania Ave, NW Washington, DC 20220 […]

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Letter in Support of HR 5801

Posted on December 6, 2021 (August 7, 2023)

November 29, 2021 The Honorable A. Donald McEachin (D-VA) House of Representatives Washington, DC 20515 The Honorable Rodney Davis (R-IL) […]

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Alpha-1 Awareness Month Recap: Week 4

Posted on December 1, 2021 (August 7, 2023)

November 30th marked the last day of Alpha-1 Awareness Month and this year was the most successful to date! WHAT A […]

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Posted in News

23rd Gordon L. Snider Critical Issues Workshop

Posted on November 24, 2021 (May 8, 2024)

The Alpha-1 Foundation hosted the virtual 23rd Gordon L. Snider Critical Issues Workshop entitled Liver Biomarkers and the Path to […]

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Posted in News

ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update

Posted on November 23, 2021 (August 7, 2023)

November 23, 2021- To stabilize future ZEMAIRA supply, CSL Behring has been evaluating long-term enhancements to our manufacturing capabilities including […]

Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update

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Alpha-1 Awareness Month Recap: Week 3

Posted on November 23, 2021 (August 7, 2023)

As Thanksgiving quickly approaches, family and friends are gathering from across the country to support one cause: Alpha-1! The Alpha-1 […]

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Posted in News

Alpha-1 Awareness Month Recap: Week 2

Posted on November 16, 2021 (May 8, 2024)

November 15th marked the halfway point of 2021 Alpha-1 Awareness Month and this year’s campaign shows no signs of slowing […]

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Posted in News

2021 Fall Virtual Alpha-1 Lobby

Posted on November 15, 2021 (May 8, 2024)

The Alpha-1 Foundation convened the third Virtual Alpha-1 Lobby Day on Wednesday, November 10, 2021 during the annual Alpha-1 Awareness […]

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Posted in News

Alpha-1 Awareness Month Recap: Week 1

Posted on November 9, 2021 (May 21, 2024)

November is finally here and with its arrival comes cooler temperatures, autumn scenery, and most importantly, Alpha-1 Awareness Month! On […]

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Posted in News

Grab your sneakers… it’s time for the Alpha-1 Virtual Walk 2021!

Posted on November 1, 2021 (May 8, 2024)

November 1, 2021- The Alpha-1 Foundation Virtual Walk 2021 kicks off today and is off an amazing start! With over […]

Read More… from Grab your sneakers… it’s time for the Alpha-1 Virtual Walk 2021!

Posted in News

Coronavirus (COVID-19) Update: FDA Takes Additional Actions on the Use of a Booster Dose for COVID-19 Vaccines

Posted on October 22, 2021 (August 7, 2023)

For Immediate Release: October 20, 2021 Today, the U.S. Food and Drug Administration took action to expand the use of […]

Read More… from Coronavirus (COVID-19) Update: FDA Takes Additional Actions on the Use of a Booster Dose for COVID-19 Vaccines

Posted in News

CDC Expands Eligibility for COVID-19 Booster Shots

Posted on October 22, 2021 (July 30, 2024)

Today, CDC Director Rochelle P. Walensky, M.D., M.P.H., endorsed the CDC Advisory Committee on Immunization Practices’ (ACIP) recommendation for a […]

Read More… from CDC Expands Eligibility for COVID-19 Booster Shots

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Alpha-1 Foundation stands with ATS regarding FDA Authorization of E-cigarette Product

Posted on October 20, 2021 (May 8, 2024)

“The Alpha-1 Foundation strongly agrees with the American Thoracic Society (ATS) position objecting to the FDA’s authorization of the tobacco-flavored […]

Read More… from Alpha-1 Foundation stands with ATS regarding FDA Authorization of E-cigarette Product

Posted in News

INBRX-101 Shows Favorable Safety Profile in Patients with Alpha-1 Antitrypsin Deficiency

Posted on October 14, 2021 (October 4, 2024)

“The update shared this week by Inhibrx on their Recombinant Alpha-1-antitrypsin (INBRX-101) is exciting news for the Alpha-1 Community. The […]

Read More… from INBRX-101 Shows Favorable Safety Profile in Patients with Alpha-1 Antitrypsin Deficiency

Posted in News, Press Release

CSL Behring announcement on their product Zemaira

Posted on October 8, 2021 (August 7, 2023)

Today, the Alpha-1 Foundation received the following communication from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for […]

Read More… from CSL Behring announcement on their product Zemaira

Posted in News, Press Release

The Alpha-1 Foundation selects new President and Chief Executive Officer

Posted on September 30, 2021 (May 7, 2024)

FOR IMMEDIATE RELEASE The Alpha-1 Foundation announces the selection of Mr. Scott Santarella as the new President and Chief Executive […]

Read More… from The Alpha-1 Foundation selects new President and Chief Executive Officer

Posted in News, Press Release

FOR IMMEDIATE RELEASE: Celebrating 25 Years of Riding for Team Alpha-1: “Then and Now”

Posted on September 24, 2021 (May 7, 2024)

Through the eyes of Joe Reidy, Alpha and Participant for 25 years: First Autumn Escape to the Cape Bike Trek […]

Read More… from FOR IMMEDIATE RELEASE: Celebrating 25 Years of Riding for Team Alpha-1: “Then and Now”

Posted in News

FDA Authorizes Booster Dose of Pfizer-BioNTech COVID-19 Vaccine for Certain Populations

Posted on September 24, 2021 (August 7, 2023)

September 22, 2021- Today, the U.S. Food and Drug Administration amended the emergency use authorization (EUA) for the Pfizer-BioNTech COVID-19 […]

Read More… from FDA Authorizes Booster Dose of Pfizer-BioNTech COVID-19 Vaccine for Certain Populations

Posted in News

FDA Approves First COVID-19 Vaccine: Approval Signifies Key Achievement for Public Health

Posted on August 23, 2021 (August 7, 2023)

“We are pleased to hear that the Pfizer-BioNTech COVID-19 Vaccine has received full FDA approval.  We strongly recommend that everyone receive […]

Read More… from FDA Approves First COVID-19 Vaccine: Approval Signifies Key Achievement for Public Health

Posted in News

COPD Foundation Condemns Big Tobacco Acquisition of Pharmaceutical Company

Posted on August 20, 2021 (August 7, 2023)

A company that profits from the sale of tobacco products that cause COPD should not profit from the sale of […]

Read More… from COPD Foundation Condemns Big Tobacco Acquisition of Pharmaceutical Company

Posted in News, Press Release

Coronavirus (COVID-19) Update: FDA Authorizes Additional Vaccine Dose for Certain Immunocompromised Individuals

Posted on August 13, 2021 (October 4, 2024)

Today, the U.S. Food and Drug Administration amended the emergency use authorizations (EUAs) for both the Pfizer-BioNTech COVID-19 Vaccine and […]

Read More… from Coronavirus (COVID-19) Update: FDA Authorizes Additional Vaccine Dose for Certain Immunocompromised Individuals

Posted in News

HealthCare.gov Special Enrollment Period Enrollment Ends August 15!

Posted on August 10, 2021 (August 7, 2023)

The HealthCare.gov Special Enrollment Period is coming to an end on August 15, 2021. The Centers for Medicare and Medicaid Services (CMS) […]

Read More… from HealthCare.gov Special Enrollment Period Enrollment Ends August 15!

Posted in News

Obituary for Glen Arlan Perkins

Posted on July 28, 2021 (August 7, 2023)

Glen A. Perkins, 80, of Wildwood, FL passed away peacefully on July 24 at home. Glen will be remembered fondly […]

Read More… from Obituary for Glen Arlan Perkins

Posted in News

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