March 22, 2021 The Honorable Frank Pallone Chairman Committee on Energy and Commerce 2125 Rayburn House Office Building Washington, DC […]
Read More… from “Building on the ACA: Legislation to Expand Health Coverage and Lower Costs
Readers discuss equity issues in U.S. eligibility and the decision to send some of the U.S. stockpile to other countries. […]
The Alpha-1 Foundation is proud to share this correspondence from our membership organization. Statement of Confirmation of Secretary Becerra and […]
Happy St. Patrick’s Day from the Alpha-1 Foundation St. Patrick’s Day is celebrated annually on March 17, the anniversary of […]
Read More… from Happy St. Patrick’s Day from The Alpha-1 Foundation
Announcing the 2021 Celtic Connection Shillelagh Award: Dedicated to our COVID-19 Researchers and Frontline Workers The 13th Annual Celtic Connection […]
The Alpha-1 Foundation received the following correspondence from the National Organization for Rare Disorder’s policy team on March 12th, 2021: […]
Read More… from What does the COVID relief bill mean for rare disease patients?
It is with great sadness that we share the news that veteran AlphaNet Coordinator Gayle Allison Tipper passed away on […]
Read More… from The Alpha-1 Foundation Mourns the Loss of Veteran Coordinator Gayle Tipper
The Alpha-1 Foundation has received the following correspondence from the EveryLife Foundation regarding the introduction of the STAT Act: I […]
The Alpha-1 Foundation received the following correspondence from Grifols on March 10, 2021: As part of our ongoing commitment to […]
Read More… from Voluntary Withdrawal of Gamunex-C Lot No. A1GLE01532, A1GLE01542 & A4GLE01482
Professor Gerry McElvaney, Professor of Medicine at RCSI University of Medicine and Health Sciences, has been awarded the HRB Impact […]
Read More… from Professor Gerry McElvaney wins HRB Impact Award 2021
The annual Celtic Connection will take place virtually on ZOOM on Saturday, March 13, 2021. The evening will begin at […]
Read More… from Join us for the 2021 Celtic Connection from home!
The Alpha-1 Foundation hosted the virtual 21st Gordon L. Snider Critical Issues Workshop entitled, Exacerbations and Pulmonary Comorbidities on Friday, […]
Read More… from Alpha-1 Foundation Hosted 21st Gordon L. Snider Critical Issues Workshop
CSL Behring has reported to the Alpha-1 Foundation that the distribution hold on their inventory has been lifted and they […]
Read More… from UPDATE February 2, 2021: ZEMAIRA® Alpha‐1 Proteinase Inhibitor (Human) Update
PPTA Statement on Immunoglobulin Use to Meet Clinical Need A recent publication explores possible reasons for the increased use of […]
January 29, 2020- The Alpha-1 Foundation is excited to host the two- day virtual 21st Gordon L. Snider Critical Issues […]
Read More… from 21st Gordon L. Snider Critical Issues Workshop “Exacerbations and Comorbidities”
Summary of major changes: Beginning two weeks after the second dose of a two dose vaccine, it will not be […]
January 21, 2021- We have become aware today of this voluntary Class II recall from CSL Behring. Please see full […]
Read More… from ZEMAIRA Alpha-1 Proteinase Inhibitor (Human) Update
January 21, 2021 President Joseph Biden 1600 Pennsylvania Ave., NW Washington, DC 20500 Dear President Biden, We, the undersigned patient […]
January 22, 2021 CDC Advisory Committee on Immunization Practices [Docket No. CDC–2021–0002] Federal Register RE: Individuals with Alpha-1 Antitrypsin Deficiency […]
It is with great sadness that we share the news that long-time AlphaNet Coordinator Darrell Nall passed away on Sunday, January 17th […]
Read More… from The Alpha-1 Community Mourns the Loss of Darrell Nall
The Alpha-1 Foundation has created a letter template for Alpha-1 patients to qualify for early immunization against COVID-19. The Centers […]
It is with great sadness that we share the news that Karen L. Fraser passed away on January 2, 2021. […]
Read More… from The Alpha-1 Community Mourns the loss of Karen L. Fraser
Shortness of Breath May Be a Sign of Alpha-1 Antitrypsin Deficiency Learn More About Alpha-1: here FB Ad: https://www.alpha1.org/Alpha1/wp-content/uploads/2021/01/FB-Ad.png If […]
https://www.nbcconnecticut.com/news/sports/hiking-for-a-cure-boltons-jonathan-maidment-completes-the-triple-crown/2393994/?fbclid=IwAR0xrMx0SXiasTaR2wig3psrNf__2ncTJBWHkE35tXb6_2DQwoStjBeBER4 Jonathan Maidment wasn’t much of a hiker. “I was always the slow guy,” said Maidment. “The guy that everyone […]
