https://www.nbcconnecticut.com/news/sports/hiking-for-a-cure-boltons-jonathan-maidment-completes-the-triple-crown/2393994/?fbclid=IwAR0xrMx0SXiasTaR2wig3psrNf__2ncTJBWHkE35tXb6_2DQwoStjBeBER4 Jonathan Maidment wasn’t much of a hiker. “I was always the slow guy,” said Maidment. “The guy that everyone […]
December 22, 2020 – The Ad Hoc Group for Medical Research issued the following statement in response to funding included […]
Read More… from Ad Hoc Group Statement on NIH Funding in Year-End Legislation
Monday, December 21 Congress Reaches an Agreement on COVID-19 Relief Bill and Surprise Medical Billing COVID Relief Package Over the weekend, […]
December 12, 2020 The Alpha-1 Foundation hosted the virtual 20th Gordon L. Snider Critical Issues Workshop entitled, The Promise of […]
The CARES (Coronavirus Aid, Relief, and Economic Security) Act is designed to help you, businesses and nonprofits facing economic hardship […]
Workshops, such as today’s 20th Gordon L. Snider Critical Issues Workshop titled “The Promise of Gene-based Interventions of Alpha-1 Antitrypsin […]
November Alpha-1 Awareness month successfully obtained its goal and raised awareness for Alpha-1 Antitrypsin Deficiency around the United States. November […]
Read More… from A Look Back at the 2020 November Virtual Alpha-1 Awareness Month
The Alpha-1 Foundation held its first ever Virtual Alpha-1 Lobby Day on Tuesday, November 17, 2020 in order to bring […]
December 4, 2020 The Honorable Joseph R. Biden, Jr. President-elect 1401 Constitution Ave. NW Washington, DC 20230 Dear President-elect Biden: […]
Read More… from Ad Hoc Group for Medical Research Letter to President-elect Joe Biden
Is Your Chronic Cough Genetic? If you’re experiencing an unexplained, long-term persistent cough, you might have a rare genetic condition […]
FOR IMMEDIATE RELEASE November 19, 2020- After hiking the Continental Divide for the past five months, Jonathan Maidment completes his […]
Medicare Open Enrollment begins on October 15, 2020 and ends on December 7, 2020. During this time, Medicare beneficiaries can […]
“Joe Zuraw has been a friend to the Alpha-1 Community for more than 20 years, he has worked tirelessly on […]
COVID-19 continues to present a prolonged, global public health emergency, but PPTA remains steadfastly committed to its mission to promote […]
FOR IMMEDIATE RELEASE November 2, 2020- The Alpha-1 Foundation is proud to announce the establishment of the Alpha-1 Foundation Therapeutic […]
Miami, October 30, 2020 – Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise […]
Read More… from Get excited for November Alpha-1 Awareness Month!
“We are grateful for Vertex’s expedited and direct communication with the Alpha-1 Community in releasing the attached statement about discontinuing […]
“The announcement today of the collaboration between Takeda and Arrowhead for a licensure deal for ARO-AAT, a phase 2 investigational […]
To look at him, Don Davis seems fine. He has been a part of the Tunkhannock Area School District landscape […]
Dr. Edward N. Krapels, a resident of Andover, MA and Silver Lake, NH passed away on September 25th due to […]
Joyce Mary Joyce Finch, age 83, died early Tuesday, September 22, 2020 at her home in Greenville, Michigan. Joyce was […]
Faith in Public Health Guidance, Vaccine, and Treatment Approval Processes Must be Restored to Overcome the Pandemic WASHINGTON, September 22, […]
PRESS RELEASE Sept. 16, 2020 Arrowhead ARO-AAT Phase 2 Interim Results in Patients with Alpha-1 Liver Disease Demonstrate Improvements in […]
Read More… from Arrowhead ARO-AAT Phase 2 Interim Results in Patients with Alpha-1 Liver Disease
From the Desk of Miriam O’Day, President & CEO of the Alpha-1 Foundation: “It is with extreme disappointment that the […]
Read More… from Statements on Takeda Clinical Trial (TAK-883-3001)
