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Category: News

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August 19, 2020

NIH Awards Multicenter Rare Disease Grant to Alpha-1 Antitrypsin Disease Cohort: Longitudinal Biomarker Study of Disease

August 18, 2020 The National Institutes of Health (NIH), National Heart, Lung, and Blood Institute (NHLBI) has announced the award […]

Read More… from NIH Awards Multicenter Rare Disease Grant to Alpha-1 Antitrypsin Disease Cohort: Longitudinal Biomarker Study of Disease

August 12, 2020

2020 John W. Walsh Translational Research Award

Nazli Khodayari, PhD receives the 2020 John W. Walsh Translational Research Award for the research grant entitled “Novel Biomarkers for […]

Read More… from 2020 John W. Walsh Translational Research Award

August 7, 2020

PPTA: Letter to Secretary Azar

Dear Secretary Azar: On behalf of the Plasma Protein Therapeutics Association (PPTA), we wish to commend the Department’s efforts to […]

Read More… from PPTA: Letter to Secretary Azar

August 6, 2020

Help Us Say Thank You to Plasma Donors!

What better way for the Alpha-1 community to thank plasma donors and staff than from the heart! Let them know […]

Read More… from Help Us Say Thank You to Plasma Donors!

August 6, 2020

President Signs Executive Orders on Making Telehealth Flexibilities Permanent and Increasing Access to Rural Health

August 4, 2020– President Trump signed an Executive Order on Improving Rural Health and Telehealth Access. The purpose of the […]

Read More… from President Signs Executive Orders on Making Telehealth Flexibilities Permanent and Increasing Access to Rural Health

August 4, 2020

Advocacy Webinar Summer Series: Register today, to help change tomorrow for Alphas!

Want to learn how to make your voice heard to change public policy while raising awareness for Alpha-1 Antitrypsin Deficiency? […]

Read More… from Advocacy Webinar Summer Series: Register today, to help change tomorrow for Alphas!

July 28, 2020

Alpha-1 Foundation welcomes new Board of Director, Jon Hagstrom

The Alpha-1 Foundation is proud to announce and introduce its newest Board of Director, Jon Hagstrom. Jon Hagstom was diagnosed […]

Read More… from Alpha-1 Foundation welcomes new Board of Director, Jon Hagstrom

July 28, 2020

Join Alpha, Chris Riely for a summer virtual Building Friends for a Cure Yoga Class

Register now for a great Alpha-1 fundraiser, Saturday, August 1, 2020 at 9:00 AM ET Clarissa (Chris) Riely started practicing […]

Read More… from Join Alpha, Chris Riely for a summer virtual Building Friends for a Cure Yoga Class

July 28, 2020

John Lewis – A Friend to Our Community

On July 17th, the COPD Community lost one of its best friends, Congressman John Lewis. We have all been aware […]

Read More… from John Lewis – A Friend to Our Community

July 24, 2020

Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening

Re: Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening Dear Task Force Members: The Alpha-1 Foundation appreciates the opportunity […]

Read More… from Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening

July 22, 2020

ISCT Statement on the Marketing of Unproven Stem Cell Treatments for COVID-19

In the light of the unfolding COVID-19 pandemic, there is urgent need for new therapies, particularly for critically ill patients. […]

Read More… from ISCT Statement on the Marketing of Unproven Stem Cell Treatments for COVID-19

July 21, 2020

A Highly Phenotyped Open Access Repository of Alpha-1 Antitrypsin Deficiency Pluripotent Stem Cells

Individuals with the genetic disorder alpha-1 antitrypsin deficiency (AATD) are at risk of developing lung and liver disease. Patient induced […]

Read More… from A Highly Phenotyped Open Access Repository of Alpha-1 Antitrypsin Deficiency Pluripotent Stem Cells

July 14, 2020

COPD Foundation Announces New Appointment

The Alpha-1 Foundation congratulates Dr. James Crapo on his new appointment as the Chairman of the Board of Directors and […]

Read More… from COPD Foundation Announces New Appointment

June 27, 2020

Virtual Alpha-1 National Conference: Day 3 Recap

From the Desk of Miriam O’Day:Day three of the conference kicked off with an incredible presentation from keynote speaker, Dr. […]

Read More… from Virtual Alpha-1 National Conference: Day 3 Recap

June 26, 2020

Virtual Alpha-1 National Conference: Day 2 Recap

Day 2 Recap “I have enjoyed all of the sessions and presentations. Such excellent questions from the community!”          […]

Read More… from Virtual Alpha-1 National Conference: Day 2 Recap

June 25, 2020

Virtual Alpha-1 National Conference: Day 1 Recap

“All of our experts have been so generous with their genius.” – Richard Lovrich, Alpha-1 patient. Thank you for registering […]

Read More… from Virtual Alpha-1 National Conference: Day 1 Recap

June 24, 2020

Be Part of the First Ever Virtual Alpha-1 National Conference…. Here’s Why

The Alpha-1 Foundation is excited to launch the first ever Virtual National Conference. In 2020, we have provided the entire […]

Read More… from Be Part of the First Ever Virtual Alpha-1 National Conference…. Here’s Why

June 22, 2020

Publication in “Gastroenterology”: Study on Liver Involvement in mild Alpha-1 Antitrypsin Deficiency

Study on liver involvement in mild alpha-1-antitrypsin deficiency published in “Gastroenterology” The Alpha1-Liver Team from Aachen, Germany, which coordinates the […]

Read More… from Publication in “Gastroenterology”: Study on Liver Involvement in mild Alpha-1 Antitrypsin Deficiency

May 26, 2020

MEDICARE AND MEDICAID PROGRAMS; POLICY AND REGULATORY REVISIONS IN RESPONSE TO THE COVID-19 PUBLIC HEALTH EMERGENCY

The 26 undersigned organizations are pleased to submit our comments on the Centers for Medicare & Medicaid Services’ (CMS’) continuing […]

Read More… from MEDICARE AND MEDICAID PROGRAMS; POLICY AND REGULATORY REVISIONS IN RESPONSE TO THE COVID-19 PUBLIC HEALTH EMERGENCY

May 11, 2020

COVID Survivors’ Blood Plasma Is A Sought-After New Commodity

Diana Berrent learned she had tested positive for COVID-19 on a Wednesday in mid-March. Within a day, she had received […]

Read More… from COVID Survivors’ Blood Plasma Is A Sought-After New Commodity

May 9, 2020

Compassion is a Key Weapon Helping Us Defeat the Coronavirus: James K. Stoller, Peter J. Rea and Alan Kolp

Co-authored by Alpha-1 Foundation Board of Director James Stoller, MD, MS CLEVELAND — Tips to avoid becoming infected with COVID-19 […]

Read More… from Compassion is a Key Weapon Helping Us Defeat the Coronavirus: James K. Stoller, Peter J. Rea and Alan Kolp

May 8, 2020

2020 European Alpha-1 Awareness Day

 25 April 2020 marked the third annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]

Read More… from 2020 European Alpha-1 Awareness Day

April 28, 2020

The Associated Press Remembers COVID-19 Patients From Around The World. Alpha friend Joanne Melody is Remembered.

Joanne Mellady, an incredible individual and active volunteer of the Alpha-1 Foundation is remembered for her love of life. Joanne […]

Read More… from The Associated Press Remembers COVID-19 Patients From Around The World. Alpha friend Joanne Melody is Remembered.

April 6, 2020

Global Plasma Leaders Collaborate to Accelerate Development of Potential COVID-19 Hyperimmune Therapy

Partnership brings together world-leading plasma companies to focus on developing and delivering a hyperimmune immunoglobulin in the global fight against […]

Read More… from Global Plasma Leaders Collaborate to Accelerate Development of Potential COVID-19 Hyperimmune Therapy

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