Category: News

The Alpha-1 Foundation is proud to announce and introduce its newest Board of Director, Jon Hagstrom. Jon Hagstom was diagnosed […]

Read More… from Alpha-1 Foundation welcomes new Board of Director, Jon Hagstrom

Register now for a great Alpha-1 fundraiser, Saturday, August 1, 2020 at 9:00 AM ET Clarissa (Chris) Riely started practicing […]

Read More… from Join Alpha, Chris Riely for a summer virtual Building Friends for a Cure Yoga Class

On July 17th, the COPD Community lost one of its best friends, Congressman John Lewis. We have all been aware […]

Read More… from John Lewis – A Friend to Our Community

Re: Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening Dear Task Force Members: The Alpha-1 Foundation appreciates the opportunity […]

Read More… from Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening

In the light of the unfolding COVID-19 pandemic, there is urgent need for new therapies, particularly for critically ill patients. […]

Read More… from ISCT Statement on the Marketing of Unproven Stem Cell Treatments for COVID-19

Individuals with the genetic disorder alpha-1 antitrypsin deficiency (AATD) are at risk of developing lung and liver disease. Patient induced […]

Read More… from A Highly Phenotyped Open Access Repository of Alpha-1 Antitrypsin Deficiency Pluripotent Stem Cells

The Alpha-1 Foundation congratulates Dr. James Crapo on his new appointment as the Chairman of the Board of Directors and […]

Read More… from COPD Foundation Announces New Appointment

From the Desk of Miriam O’Day:Day three of the conference kicked off with an incredible presentation from keynote speaker, Dr. […]

Read More… from Virtual Alpha-1 National Conference: Day 3 Recap

Day 2 Recap “I have enjoyed all of the sessions and presentations. Such excellent questions from the community!”          […]

Read More… from Virtual Alpha-1 National Conference: Day 2 Recap

“All of our experts have been so generous with their genius.” – Richard Lovrich, Alpha-1 patient. Thank you for registering […]

Read More… from Virtual Alpha-1 National Conference: Day 1 Recap

The Alpha-1 Foundation is excited to launch the first ever Virtual National Conference. In 2020, we have provided the entire […]

Read More… from Be Part of the First Ever Virtual Alpha-1 National Conference…. Here’s Why

Study on liver involvement in mild alpha-1-antitrypsin deficiency published in “Gastroenterology” The Alpha1-Liver Team from Aachen, Germany, which coordinates the […]

Read More… from Publication in “Gastroenterology”: Study on Liver Involvement in mild Alpha-1 Antitrypsin Deficiency

The 26 undersigned organizations are pleased to submit our comments on the Centers for Medicare & Medicaid Services’ (CMS’) continuing […]

Read More… from MEDICARE AND MEDICAID PROGRAMS; POLICY AND REGULATORY REVISIONS IN RESPONSE TO THE COVID-19 PUBLIC HEALTH EMERGENCY

Diana Berrent learned she had tested positive for COVID-19 on a Wednesday in mid-March. Within a day, she had received […]

Read More… from COVID Survivors’ Blood Plasma Is A Sought-After New Commodity

 25 April 2020 marked the third annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]

Read More… from 2020 European Alpha-1 Awareness Day

Joanne Mellady, an incredible individual and active volunteer of the Alpha-1 Foundation is remembered for her love of life. Joanne […]

Read More… from The Associated Press Remembers COVID-19 Patients From Around The World. Alpha friend Joanne Melody is Remembered.

Partnership brings together world-leading plasma companies to focus on developing and delivering a hyperimmune immunoglobulin in the global fight against […]

Read More… from Global Plasma Leaders Collaborate to Accelerate Development of Potential COVID-19 Hyperimmune Therapy

March 24, 2020 The American Plasma Users Coalition (APLUS) appreciates the current efforts of your agency to protect public health […]

Read More… from APLUS Supports Plasma Donor Recognition & Home Infusion

In light of the Public Health Emergency concerning the coronavirus disease 2019 (COVID-19), the Office for Civil Rights (OCR) at […]

Read More… from BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)

A team of more than 50 volunteers at the  Center for Regenerative Medicine (CReM) on Boston University’s Medical Campus, directed by Alpha doctor, […]

Read More… from Facing Dire Shortages, 50 Boston Collaborators Develop Their Own FDA-Approved Coronavirus Test