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On July 17th, the COPD Community lost one of its best friends, Congressman John Lewis. We have all been aware […]
Re: Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening Dear Task Force Members: The Alpha-1 Foundation appreciates the opportunity […]
Read More… from Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening
In the light of the unfolding COVID-19 pandemic, there is urgent need for new therapies, particularly for critically ill patients. […]
Read More… from ISCT Statement on the Marketing of Unproven Stem Cell Treatments for COVID-19
Individuals with the genetic disorder alpha-1 antitrypsin deficiency (AATD) are at risk of developing lung and liver disease. Patient induced […]
The Alpha-1 Foundation congratulates Dr. James Crapo on his new appointment as the Chairman of the Board of Directors and […]
From the Desk of Miriam O’Day:Day three of the conference kicked off with an incredible presentation from keynote speaker, Dr. […]
Read More… from Virtual Alpha-1 National Conference: Day 3 Recap
Day 2 Recap “I have enjoyed all of the sessions and presentations. Such excellent questions from the community!” […]
Read More… from Virtual Alpha-1 National Conference: Day 2 Recap
“All of our experts have been so generous with their genius.” – Richard Lovrich, Alpha-1 patient. Thank you for registering […]
Read More… from Virtual Alpha-1 National Conference: Day 1 Recap
The Alpha-1 Foundation is excited to launch the first ever Virtual National Conference. In 2020, we have provided the entire […]
Read More… from Be Part of the First Ever Virtual Alpha-1 National Conference…. Here’s Why
Study on liver involvement in mild alpha-1-antitrypsin deficiency published in “Gastroenterology” The Alpha1-Liver Team from Aachen, Germany, which coordinates the […]
The 26 undersigned organizations are pleased to submit our comments on the Centers for Medicare & Medicaid Services’ (CMS’) continuing […]
Diana Berrent learned she had tested positive for COVID-19 on a Wednesday in mid-March. Within a day, she had received […]
Read More… from COVID Survivors’ Blood Plasma Is A Sought-After New Commodity
Co-authored by Alpha-1 Foundation Board of Director James Stoller, MD, MS CLEVELAND — Tips to avoid becoming infected with COVID-19 […]
25 April 2020 marked the third annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]
Joanne Mellady, an incredible individual and active volunteer of the Alpha-1 Foundation is remembered for her love of life. Joanne […]
Partnership brings together world-leading plasma companies to focus on developing and delivering a hyperimmune immunoglobulin in the global fight against […]
For Immediate Release April 1, 2020 -Alphas on Medicare have a new Choice! The Centers for Medicare and Medicaid […]
March 24, 2020 The American Plasma Users Coalition (APLUS) appreciates the current efforts of your agency to protect public health […]
Read More… from APLUS Supports Plasma Donor Recognition & Home Infusion
In light of the Public Health Emergency concerning the coronavirus disease 2019 (COVID-19), the Office for Civil Rights (OCR) at […]
Read More… from BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)
As a global pharmaceutical leader, we are doing all we can to protect the health of our employees, their families […]
A team of more than 50 volunteers at the Center for Regenerative Medicine (CReM) on Boston University’s Medical Campus, directed by Alpha doctor, […]
March 26, 2020 Early this morning, the Senate passed a $2 trillion COVID-19 relief bill. The Bill (S. 3548) is […]
Read More… from CARES ACT Bill (S.3548) passed by The Senate
Barcelona, March 25, 2020 – Grifols today announces that it has entered into a formal collaboration with the United States […]
Because of COVID-19’s impacts on the lungs, the U.S. Alpha-1 Foundation has provided detailed, specific guidance for patients who have alpha […]
Read More… from Coronavirus: Alpha 1 Group Gives Specific Guidance for Patients
