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Top Stories

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August 10, 2021

HealthCare.gov Special Enrollment Period Enrollment Ends August 15!

The HealthCare.gov Special Enrollment Period is coming to an end on August 15, 2021. The Centers for Medicare and Medicaid Services (CMS) […]

Read More… from HealthCare.gov Special Enrollment Period Enrollment Ends August 15!

July 28, 2021

Obituary for Glen Arlan Perkins

Glen A. Perkins, 80, of Wildwood, FL passed away peacefully on July 24 at home. Glen will be remembered fondly […]

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June 30, 2021

Alpha-1 Foundation Signs on to APLUS Plasma Collection Concerns Letter

June 30, 2021 The Honorable Alejandro Mayorkas Secretary U.S. Department of Homeland Security RE: Concerns regarding donation of source plasma […]

Read More… from Alpha-1 Foundation Signs on to APLUS Plasma Collection Concerns Letter

June 28, 2021

Alpha-1 Foundation Awards 2021 Grants

FOR IMMEDIATE RELEASE: The Alpha-1 Foundation has established priorities that are important to its mission of proceeding as rapidly as […]

Read More… from Alpha-1 Foundation Awards 2021 Grants

June 18, 2021

A 3rd Dose Of COVID Vaccines May Boost Immunity For Transplant Recipients

NPR ARTICLE: June 15, 2021 A small new study offers a glimmer of hope that giving organ transplant recipients a […]

Read More… from A 3rd Dose Of COVID Vaccines May Boost Immunity For Transplant Recipients

June 16, 2021

Alpha-1 Foundation welcomes new Board of Director, Faron Schonfeld

The Alpha-1 Foundation is proud to announce and introduce its newest Board of Director, Faron Schonfeld. Faron spent 18 years […]

Read More… from Alpha-1 Foundation welcomes new Board of Director, Faron Schonfeld

June 16, 2021

Day 3 Recap: Virtual Alpha-1 National Conference

Thank you for being part of the 2021 Virtual Alpha-1 National Conference! You, the Alphas, are the center of everything […]

Read More… from Day 3 Recap: Virtual Alpha-1 National Conference

June 11, 2021

DAY TWO RECAP: 2021 Virtual Alpha-1 National Conference

Thank you for participating in DAY TWO of the 2021 Virtual Alpha-1 National Conference. Today was a great day of interaction, […]

Read More… from DAY TWO RECAP: 2021 Virtual Alpha-1 National Conference

June 10, 2021

DAY ONE RECAP: 2021 Virtual Alpha-1 National Conference

Thank you for registering and joining the first day of the 2021 Virtual Alpha-1 National Conference. Today we were joined […]

Read More… from DAY ONE RECAP: 2021 Virtual Alpha-1 National Conference

June 10, 2021

Vertex Announces Primary Endpoint Achieved in Phase 2 Study of VX-864 in Alpha-1 Antitrypsin Deficiency

June 11, 2021 “The Alpha-1 Foundation looks forward to continuing to work with Vertex in their drive to develop primary […]

Read More… from Vertex Announces Primary Endpoint Achieved in Phase 2 Study of VX-864 in Alpha-1 Antitrypsin Deficiency

June 9, 2021

The Alpha-1 Foundation Launches the 2021 Virtual Alpha-1 National Conference

June 9, 2021- FOR IMMEDIATE RELEASE The 2021 Virtual Alpha-1 National Conference will take place from June 10th– June 12th, […]

Read More… from The Alpha-1 Foundation Launches the 2021 Virtual Alpha-1 National Conference

June 7, 2021

Dr. Jeanine D’Armiento receives distinguished honor at Columbia University

Jeanine D’Armiento, MD, PhD, Chair of the Alpha-1 Foundation Board of Directors, has been nominated and selected by the Columbia […]

Read More… from Dr. Jeanine D’Armiento receives distinguished honor at Columbia University

May 27, 2021

Updated COVID-19 Guidance & Recommendations for Alphas

STATEMENT UPDATED: May 26, 2021 Please note, this statement is specific to the United States.  If you are an individual […]

Read More… from Updated COVID-19 Guidance & Recommendations for Alphas

May 21, 2021

Alpha-1 Foundation Leadership Transition Announcement

TO: Alpha-1 Community FROM: Alpha-1 Foundation Board of Directors RE: Leadership Transition Announcement DATE: 5/21/2021 We are writing to announce […]

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May 21, 2021

Announcement: ZEMAIRA Alpha-1 Proteinase Inhibitor (Human) Update

1020 First Avenue • King of Prussia, PA 19406-0901 CSL.com  CSLBehring.com May 21, 2021 ANNOUNCEMENT RECEIVED FROM CSL BEHRING  CSL […]

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May 7, 2021

Sally Struthers, Two-Time Emmy Award Winner and Golden Globe Winner, To Be The Guest Speaker At The “All in For Alpha-1 Celebration” Fundraiser

(MIAMI, FL) – The Alpha-1 Foundation is excited to announce our guest speaker, Sally Struthers, for the “All in for […]

Read More… from Sally Struthers, Two-Time Emmy Award Winner and Golden Globe Winner, To Be The Guest Speaker At The “All in For Alpha-1 Celebration” Fundraiser

May 7, 2021

Access to Health Coverage Means Access to Care: Patient Groups Urge Congress to Include Affordability Measures in Next Legislative Package

May 6, 2021, WASHINGTON, D.C. – 32 organizations representing millions of people with pre-existing conditions urge Congress and the Administration […]

Read More… from Access to Health Coverage Means Access to Care: Patient Groups Urge Congress to Include Affordability Measures in Next Legislative Package

April 28, 2021

Arrowhead Announces Improvement in Fibrosis after ARO-AAT Treatment in Patients with Alpha-1 Liver Disease

“The Arrowhead Pharmaceuticals Inc. interim study results from the open label phase 2 clinical ARO-AAT, a RNAi therapy, provide proof […]

Read More… from Arrowhead Announces Improvement in Fibrosis after ARO-AAT Treatment in Patients with Alpha-1 Liver Disease

April 23, 2021

News on Plasma Awareness Act

We are excited to announce that Senators Amy Klobuchar (D-MN) and Roger Wicker (R-MS) introduced the Plasma Donation Awareness Act […]

Read More… from News on Plasma Awareness Act

April 20, 2021

Updated COVID-19 Guidance for Alphas: April 16, 2021

Updated COVID-19 Guidance for Alphas STATEMENT UPDATED: April 16, 2021 Please note, this statement is specific to the United States.  […]

Read More… from Updated COVID-19 Guidance for Alphas: April 16, 2021

April 20, 2021

Benefits of Pulmonary Rehabilitation in COPD Webinar: A Review of Recent Literature

The US COPD Coalition (USCC) has announced their next webinar, which will feature Allison Cihla, MD, Medical Director of Intensive […]

Read More… from Benefits of Pulmonary Rehabilitation in COPD Webinar: A Review of Recent Literature

April 13, 2021

22nd Gordon L. Snider Critical Issues Workshop

The Alpha-1 Foundation hosted the virtual 22nd Gordon L. Snider Critical Issues Workshop entitled, CT Lung Density Estimates in Alpha-1 […]

Read More… from 22nd Gordon L. Snider Critical Issues Workshop

April 6, 2021

National Pulmonary Rehabilitation Wellness Day on Wednesday, April 7th

Over 16 million people in the US have COPD1 and up to 60% of COPD cases go undiagnosed. According to […]

Read More… from National Pulmonary Rehabilitation Wellness Day on Wednesday, April 7th

March 26, 2021

Voluntary Withdrawal of Gamunex-C Lot No. A3GLE01462

The Alpha-1 Foundation has received the following correspondence from Grifols on March 26, 2021:  March 26, 2021   RE: Voluntary […]

Read More… from Voluntary Withdrawal of Gamunex-C Lot No. A3GLE01462

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