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April 12, 2022– The Alpha-1 Foundation congratulates the Haystack Project on the Senate introduction of H.R. 6888- Helping Experts Accelerate […]
April 8, 2022- Important COVID-19 Omicron Variant Update At the beginning of 2022 an Omicron variant caused a surge in […]
Read More… from Updated COVID Guidance & Recommendations for Alphas
On Monday, April 4, 2022, the Alpha-1 community came together on a Zoom reception call to kick-off the Spring 2022 […]
THE FLORIDIAN April 1, 2022- Florida Rep. Maria Elvira Salazar (R), working alongside Minnesota Rep. Chellie Pingree (D), has introduced […]
Read More… from The Floridian: Elvira Salazar, Pingree Tackle Alpha-1 Home Infusion Act
FOR IMMEDIATE RELEASE –Today, April 1, 2022, H.R. 7346: John W. Walsh Home Infusion Act will be introduced. This legislation, […]
Washington, D.C. – Today, Congresswomen Maria Elvira Salazar (FL-27) and Chellie Pingree (ME-1) introduced the John W. Walsh Alpha-1 Home […]
Over 16 million people in the US have COPD and up to 60% go undiagnosed. COPD is the third leading […]
The 14th Annual Celtic Connection took place virtually on Saturday, March 5th. The event committee joined together this year to […]
The Alpha-1 Foundation kicked off its educational series for 2022 with the Alpha-1 Education Day on Saturday, February 12, 2022. […]
The following article was published by News Channel 5 Nashville. To access the original article, please click here. NASHVILLE, Tenn. […]
Read More… from Tennessee Donor Services launches #BeTheGift Challenge to register more organ donors
The following information was published in the New York Times. To access the full article, please click here. Even as […]
February 11, 2022 The Honorable Nancy Pelosi Speaker U.S. House of Representatives Washington, DC 20515 The Honorable Charles Schumer Majority […]
“The Alpha-1 Foundation is pleased with the recent developments that have come to fruition, this is exciting and significant news […]
Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update, Approval of Thermo Fisher
Missed the COVID-19 Omicron Update Webinar? Watch the webinar now on-demand to hear the answers of frequently asked questions relating […]
Today, the U.S. Food and Drug Administration approved a second COVID-19 vaccine. The vaccine has been known as the Moderna […]
Read More… from FDA Takes Key Action by Approving Second COVID-19 Vaccine
“Our industry partners at CSL Behring are keeping in close contact with us regarding updates for the Alpha-1 community. The […]
Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update
By Robert A. Sandhaus, MD, PhD, FCCP and Bruce C. Trapnell, MD Previously, we discussed vaccination against SARS-2 CoV, the […]
Read More… from History of Vaccines & Update on COVID-19 Vaccination
TESTING There is no one recommendation for testing children for Alpha-1. This is a question that should be answered with […]
Background: Parents of children with rare diseases often face uncertainty about diagnosis, treatment, and costs associated with healthcare for their […]
As we look forward to a promising 2022, President and CEO of the Alpha-1 Foundation, Scott Santarella shares his vision […]
The Alpha-1 Foundation has created a detailed guideline of criteria that will be used to determine Foundation event activities in […]
Read More… from Alpha-1 Foundation Unveils COVID-19 Event Grid for 2022 Events
December 29, 2021- Important COVID-19 Omicron Variant Update for Alphas While Omicron may be mild in patients without lung disease, […]
Read More… from Important COVID-19 Omicron Variant Update for Alphas
“On behalf of Alpha-1 patients and families, we applaud Grifols for this incredible milestone of 1 million screenings through their […]
Read More… from Grifols Hits Milestone of Screening One Million Patients for Alpha-1
Today, the U.S. Food and Drug Administration issued an emergency use authorization (EUA) for Pfizer’s Paxlovid (nirmatrelvir tablets and ritonavir tablets, co-packaged […]
