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Background: Parents of children with rare diseases often face uncertainty about diagnosis, treatment, and costs associated with healthcare for their […]
As we look forward to a promising 2022, President and CEO of the Alpha-1 Foundation, Scott Santarella shares his vision […]
The Alpha-1 Foundation has created a detailed guideline of criteria that will be used to determine Foundation event activities in […]
Read More… from Alpha-1 Foundation Unveils COVID-19 Event Grid for 2022 Events
December 29, 2021- Important COVID-19 Omicron Variant Update for Alphas While Omicron may be mild in patients without lung disease, […]
Read More… from Important COVID-19 Omicron Variant Update for Alphas
“On behalf of Alpha-1 patients and families, we applaud Grifols for this incredible milestone of 1 million screenings through their […]
Read More… from Grifols Hits Milestone of Screening One Million Patients for Alpha-1
Today, the U.S. Food and Drug Administration issued an emergency use authorization (EUA) for Pfizer’s Paxlovid (nirmatrelvir tablets and ritonavir tablets, co-packaged […]
Emergence of Omicron CDC has been collaborating with global public health and industry partners to learn about Omicron, as we […]
Read More… from Updated COVID-19 Guidance & Recommendations for Alphas regarding the Omicron Variant
On behalf of the estimated 50 million Americans with autoimmune and immune-mediated diseases, the undersigned 64 organizations write to you […]
The Alpha-1 Foundation congratulates Haystack Project for their success in getting the Access to Rare Indications Act introduced yesterday, led […]
December 6, 2021 The Honorable Janet Yellen Secretary U.S. Department of the Treasury 1500 Pennsylvania Ave, NW Washington, DC 20220 […]
Read More… from Organizations Submit Comments on Surprise Medical Billing
November 29, 2021 The Honorable A. Donald McEachin (D-VA) House of Representatives Washington, DC 20515 The Honorable Rodney Davis (R-IL) […]
November 30th marked the last day of Alpha-1 Awareness Month and this year was the most successful to date! WHAT A […]
The Alpha-1 Foundation hosted the virtual 23rd Gordon L. Snider Critical Issues Workshop entitled Liver Biomarkers and the Path to […]
Read More… from 23rd Gordon L. Snider Critical Issues Workshop
November 23, 2021- To stabilize future ZEMAIRA supply, CSL Behring has been evaluating long-term enhancements to our manufacturing capabilities including […]
Read More… from ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update
As Thanksgiving quickly approaches, family and friends are gathering from across the country to support one cause: Alpha-1! The Alpha-1 […]
November 15th marked the halfway point of 2021 Alpha-1 Awareness Month and this year’s campaign shows no signs of slowing […]
The Alpha-1 Foundation convened the third Virtual Alpha-1 Lobby Day on Wednesday, November 10, 2021 during the annual Alpha-1 Awareness […]
November is finally here and with its arrival comes cooler temperatures, autumn scenery, and most importantly, Alpha-1 Awareness Month! On […]
November 1, 2021- The Alpha-1 Foundation Virtual Walk 2021 kicks off today and is off an amazing start! With over […]
Read More… from Grab your sneakers… it’s time for the Alpha-1 Virtual Walk 2021!
For Immediate Release: October 20, 2021 Today, the U.S. Food and Drug Administration took action to expand the use of […]
Today, CDC Director Rochelle P. Walensky, M.D., M.P.H., endorsed the CDC Advisory Committee on Immunization Practices’ (ACIP) recommendation for a […]
Read More… from CDC Expands Eligibility for COVID-19 Booster Shots
“The Alpha-1 Foundation strongly agrees with the American Thoracic Society (ATS) position objecting to the FDA’s authorization of the tobacco-flavored […]
“The update shared this week by Inhibrx on their Recombinant Alpha-1-antitrypsin (INBRX-101) is exciting news for the Alpha-1 Community. The […]
Today, the Alpha-1 Foundation received the following communication from CSL Behring, regarding Zemaira®, their prescription drug for augmentation therapy for […]
Read More… from CSL Behring announcement on their product Zemaira
