Kelly, Tillis Introduce Bipartisan Legislation to Increase Access to Plasma-Based Medicines
Today, Senators Mark Kelly (D-AZ) and Thom Tillis (R-NC) introduced the bipartisan Preserving Life-saving Access to Specialty Medicines in America […]
Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations
Plasma Hero, an initiative of the Immune Deficiency Foundation, spotlights Alpha-1 Antitrypsin Deficiency in a recent article. Thank you to […]
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Raising Alpha-1 Awareness in Oregon
Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]
Verona Pharmaceuticals announces FDA approval for Ensifentrine (Ohtuvayre), a treatment for COPD
On June 26, 2024, Verona Pharmaceuticals announced that its new medication, Ensifentrine (Ohtuvayre), was approved by the U.S. Food and […]
2024 Bettina B. Irvine Invitational Classic
On Wednesday, May 29th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]
Batter Up… It’s time to Strike Out Alpha-1!
Blake Aaronson is a 12-year-old Alpha kid and a baseball star looking to strike out Alpha-1 this summer. Together with […]
Cones for a Cure: Double Scoop of Fun & Fundraising!
The first annual Cones for a Cure Building Friends for a Cure (BFC) was help on Saturday, June 29, 2024, at the […]
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The Alpha-1 Foundation Welcomes New Board Members
The Alpha-1 Foundation announces the selection of two new members of the board of directors, Erin Carr and Alice Turner, […]
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Jon Hagstrom selected for ATS Patient Advisory Roundtable (PAR)
The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is an essential part of the ATS structure. Comprised of CEOs […]
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Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program
Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy, On behalf of the […]
Saint Louis University Researchers Identify a Biomarker for Severe Liver Disease in Infants
ST. LOUIS — In a new study, Saint Louis University School of Medicine researchers and colleagues have identified biomarkers in […]
May 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Recent Publication on INBRX-101 in Journal of the COPD Foundation
Today, Volume 11, Issue 3 of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation (JCOPDF) was published online and included Recombinant Alpha-1 […]
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Alpha-1 Foundation recognizes 2024 Grants Award Recipients at ATS Reception
On Monday, May 20th over 160 attendees joined together in San Diego, California during the annual ATS International Conference to […]
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Building Friends for a Cure Walk in memory of Lorraine Cimino
On Saturday, May 19th, 2024 Mario Cimino together with friends and family organized a walk in memory of his late […]
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Celebrate Clinical Trials Day May 20, 2024
The Alphas in our community are what powers Alpha-1 research! In honor of Clinical Trials Day, help us find a […]
Happy 100th Birthday Dr. Gerard Turino!
The Alpha-1 Foundation honors Dr. Gerard Turino, a pulmonary trailblazer today, May 16th, 2024 on his 100th birthday! Gerard M. Turino, […]
March & April 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Grifols Celebrates 50th Anniversary of its Flagship Site
On April 18th, the Alpha-1 Foundation was proud to celebrate Grifols 50th anniversary of its flagship site in Clayton, NC. Grifols […]
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Raising Awareness on European Alpha-1 Awareness Day, April 25, 2024
April 25, 2024 marks the seventh annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]
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Study furthers understanding of lung regeneration
Researchers at Boston Medical Center (BMC) and Boston University (BU) announced findings from a new research study, detailing the development […]
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New Caps on Cost of Inhalers
President Biden on Wednesday will tout Democrats’ efforts to lower the cost of inhalers after drugmakers announced plans to cap […]
Building Friends for a Cure Training
The Alpha-1 Foundation was excited to convene a Building Friends for a Cure (BFC (Building Friends for a Cure)) Training […]
26th Gordon L. Snider Critical Issues Workshop
Pragmatic Solutions to Clinical Trial Endpoints for Lung Diseases in AATD, and AAT Variant Nomenclature The Alpha-1 Foundation was excited […]
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