On May 2, 2025, the Alpha-1 community came together on the serene waters of Lake Norman, North Carolina for Cruising […]
Read More… from Cruising for a Cure: A Beautiful Night of Purpose and Progress
Richie Ramirez and his family have been proudly involved with the Alpha-1 Foundation Virtual Walk, walking under their team name, […]
FOR IMMEDIATE RELEASE MAY 5, 2025- The Alpha-1 Foundation (A1F) was recently selected as the #2 overall of the 2025 […]
Read More… from Alpha-1 Foundation selected as one of the 2025 Best Nonprofits to Work For
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
FOR IMMEDIATE RELEASE MAY 1, 2025- “I scream, you scream, we all scream for Ice Cream for Alpha-1”. The Alpha-1 […]
Read More… from Alpha-1 Foundation Launches New Summer Fundraising Campaign: Ice Cream for Alpha-1
The Alpha-1 Foundation (A1F) joins 30 organizations requesting Congress to cosponsor bipartisan legislation A.1406/H.R.2902, the Supplemental Oxygen Access Reform (SOAR) […]
Read More… from A1F signs-on urging Congress to cosponsor the SOAR Act
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The Alpha-1 Foundation’s (A1F) 7th Global Research Conference & 10th Patient Congress kicks off today in Lisbon, Portugal. With a […]
On behalf of the Alpha-1 Foundation and entire patient community, we are thrilled with the announcement of the reintroduction of […]
Korro Bio has completed the dosing of the first two single ascending dose cohorts in healthy adult volunteers. They continue […]
Read More… from Korro Bio provides update on progress made: KRRO-110
Today, St. Patrick’s Day is celebrated annually on March 17. Today, people of all backgrounds celebrate St. Patrick’s Day, especially […]
Read More… from The Celtic Connection honors St. Patrick’s Day and the Legacy of Fred C. Walsh
This week marks Pulmonary Rehabilitation Awareness Week, a time to highlight beneficial programs and resources that help people with lung […]
Read More… from Honoring Pulmonary Awareness Week: Benefits for Alpha-1 Patients
Selection for somatic escape variants in SERPINA1 in the liver of patients with alpha-1 antitrypsin deficiency “This exciting study provides evidence of […]
Read More… from Nature Genetics: Alpha-1 Research Publication March 2025
Exciting breakthrough in Alpha-1 research by Beam Therapeutics shows success in restoring the mutated Alpha-1 gene to normal. This correction […]
Read More… from Mutated DNA Restored to Normal in Gene Therapy Advance
On Friday, February 28th, 2025, the Alpha-1 Foundation (A1F) celebrated Rare Disease Day, bringing the entire community together in various […]
Read More… from A1F Honors Rare Disease Day 2025: A Day of Advocacy, Awareness, and Action
The 17th Annual Celtic Connection will take place on Saturday, March 8, 2025, at the Newton Marriott in Boston, Massachusetts. The […]
Read More… from The Celtic Connection is coming up… Get out your green attire!
Alpha-1 Foundation signs on with over 150 stakeholders, emphasizing the importance of telemedicine to Attorney General Pam Bondi. February 20, […]
Read More… from Letter to the Honorable Pam Bondi, Attorney General of the United States
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
In a recent publication of Charticles, Dr. Marty Zamora shares his connection and dedication to the Alpha-1 Foundation and its […]
Read More… from Chart Charity Art Interviews A1F Board of Director, Martin Zamora, MD
As the annual Rare Disease Day approaches, we reflect on the stories that often go untold, particularly those surrounding rare […]
Read More… from Sharing Her Rare Disease Story: Betrice Coleman-Sweet
Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]
Read More… from A1F Raises Alpha-1 Awareness Throughout February for Rare Disease Day
The Alpha-1 Foundation (A1F) is proud to commemorate its 30th anniversary of supporting patients with Alpha-1 Antitrypsin Deficiency (Alpha-1) while […]
Read More… from The Alpha-1 Foundation Commemorates its 30th Anniversary
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Many people of all ages take medications. Keeping track of when, how and why you use medications is important for […]
Read More… from Create and Keep a Medication List for Your Health
