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Author: Alpha-1 Foundation

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Posts by Alpha-1 Foundation

How to Boost Muscle Cell Production of Gene Therapy Proteins

Posted on July 27, 2022 (May 7, 2024)

The following is an article originally published by Genetic Engineering & Biotechnology News In a major new development in the […]

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How Long Does Covid Immunity Last? Will a Second Illness Be Worse? How Can I Prepare?

Posted on July 25, 2022 (August 7, 2023)

Some reinfection questions, answered. By Knvul Sheikh JUNE 11, 2022, NEW YORK TIMES – If you’re one of the millions of […]

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Former Delegate Jack Reid passes away at 79, remembered as stalwart Henrico Republican & Alpha-1 Foundation Past Board Member and Advocate

Posted on July 22, 2022 (March 25, 2024)

Longtime Henrico Delegate to the Virginia General Assembly John S. “Jack” Reid passed away peacefully on Sunday, July 17th, 2022, […]

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Alpha-1 Foundation remembers Alpha A. Curts Cooke

Posted on July 22, 2022 (October 3, 2024)

“Curts was an active member of the Alpha-1 Foundation’s development committee for nearly 10 years. His diagnosis with Alpha-1 empowered […]

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Catherine Vernon Appointed to Alpha-1 Foundation Board of Directors

Posted on July 20, 2022 (August 7, 2023)

The Alpha-1 Foundation is proud to announce the appointment of Catherine Vernon to the Alpha-1 Foundation Board of Directors. Catherine […]

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Biden Administration to Again Extend the Covid Public-Health Emergency

Posted on July 15, 2022 (August 7, 2023)

The US government will once again extend the Covid-19 public health emergency, continuing measures that have given millions of Americans […]

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Saint Louis University and Industry Partners Discover Treatment for Rare, Genetic Liver Disease

Posted on July 12, 2022 (May 8, 2024)

“We are proud of the investment Alpha-1 Foundation has made over the years of the work being done by Dr. […]

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No Horses Needed; An Alpha on the US Men’s Kayak Polo Team!

Posted on July 8, 2022 (May 8, 2024)

The Alpha-1 Foundation is proud to share this inspiring story and great accomplishment, submitted by Andrew Irvine, a fellow Alpha […]

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AlphaNet Honors Ab Rees’ Legacy with $200,000 Donation to Alpha-1 Foundation for ‘Ab Rees Fast Track Awards’

Posted on June 27, 2022 (August 7, 2023)

In honor of the late Ab Rees’ extraordinary contributions to the Alpha-1 community, AlphaNet is proud to donate $200,000 to […]

Read More… from AlphaNet Honors Ab Rees’ Legacy with $200,000 Donation to Alpha-1 Foundation for ‘Ab Rees Fast Track Awards’

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Announcing the New Chair of the Alpha-1 Foundation Board of Directors

Posted on June 23, 2022 (August 7, 2023)

FOR IMMEDIATE RELEASE The Alpha-1 Foundation announces the selection of Mr. Jon Hagstrom as the new Chair of the Alpha-1 […]

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CDC Recommends 2 COVID Vaccines for Very Young Children

Posted on June 22, 2022 (May 8, 2024)

NEW YORK TIMES June 18, 2022- The Centers for Disease Control and Prevention on Saturday recommended Covid vaccines for children […]

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Day 4 Recap: Thank you for Taking the Time to be part of the Hybrid Alpha-1 National Conference

Posted on June 11, 2022 (April 1, 2025)

June 11, 2022- Thank you to CSL Behring for opening day four with World-Class Professional Magician, Harrison Kramer and his truly interactive virtual […]

Read More… from Day 4 Recap: Thank you for Taking the Time to be part of the Hybrid Alpha-1 National Conference

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Your Day Three Recap #A1NC22

Posted on June 10, 2022 (May 8, 2024)

June 10, 2022- Today, we launched our hybrid event model combining the in-person events in Miami, Florida and New York […]

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Day 2 Recap of the 2022 Hybrid Alpha-1 National Conference

Posted on June 10, 2022 (August 7, 2023)

June 9, 2022- Day two of the Hybrid Alpha-1 National Conference was a great day of interaction, education and community! […]

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2022 Hybrid Alpha-1 National Conference: Day One Recap

Posted on June 8, 2022 (March 25, 2024)

June 8, 2022- Today kicked off the first day of the 2022 Hybrid Alpha-1 National Conference. We were joined by […]

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Connecticut Establishes a Permanent Rare Disease Advisory Council

Posted on May 24, 2022 (May 8, 2024)

May 24, Hartford, CT – Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions […]

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2022 American Thoracic Society International Conference

Posted on May 23, 2022 (May 8, 2024)

The American Thoracic Society International Conference annually convenes pulmonary experts from around the world to learn about the latest advances […]

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The Ad Hoc Group Fiscal Year 2023 Recommendation

Posted on May 11, 2022 (May 8, 2024)

The Alpha-1 Foundation signed on with nearly 400 organizations and institutions that signed on to the Ad Hoc Group’s FY […]

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ATS Patient Education: Information Series- MZ Alpha-1 Antitrypsin Deficiency

Posted on May 11, 2022 (June 26, 2024)

The American Thoracic Society produces the ATS Patient Education Series as a resource for patients, families and caregivers. The attached […]

Read More… from ATS Patient Education: Information Series- MZ Alpha-1 Antitrypsin Deficiency

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COVID-19 Therapies, Treatment & Prevention

Posted on May 5, 2022 (February 29, 2024)

It is hard to imagine that it has been two years since our lives changed completely due to the onset […]

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2022 Improving Care for Alpha-1 Patients Global Webinar

Posted on April 28, 2022 (June 26, 2024)

In anticipation of the 2022 European Alpha-1 Awareness Day on Monday, 25 April 2022, Alpha-1 Global hosted the Improving Care […]

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The Alpha- 1 Community Mourns the Loss of Ab Rees

Posted on April 15, 2022 (August 7, 2023)

It is with great sadness that we share the news that Ab Rees passed away on April 14, 2022. Ab […]

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HEART Act introduced in the Senate

Posted on April 12, 2022 (August 7, 2023)

April 12, 2022– The Alpha-1 Foundation congratulates the Haystack Project on the Senate introduction of H.R. 6888- Helping Experts Accelerate […]

Read More… from HEART Act introduced in the Senate

Posted in News

Updated COVID Guidance & Recommendations for Alphas

Posted on April 11, 2022 (July 30, 2024)

April 8, 2022- Important COVID-19 Omicron Variant Update At the beginning of 2022 an Omicron variant caused a surge in […]

Read More… from Updated COVID Guidance & Recommendations for Alphas

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