Today is Rare Disease Day!
Today, the Alpha-1 Foundation – along with Alphas, patient organizations, politicians, caregivers, medical professionals, researchers, and industry- will come together […]
Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD
Rare diseases pose particular challenges to patients who are affected, to the clinicians who care for them, and to the […]
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Increase Alpha-1 Awareness on Rare Disease Day 2023
Rare Disease Day takes place on the last day of February each year. The goal of this day is to […]
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Patient Community Healthcare Priorities for the 118th Congress
February 13, 2021 The Honorable Charles Schumer […]
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Department of Health & Human Services Releases Initial Guidance for Medicare Prescription Drug Inflation Rebate Program
Under President Biden’s prescription drug law, drug companies will pay rebates to the federal government for raising prescription drug prices […]
Respiratory Research Volume 24 Article No. 40: Lung Inflammation in alpha-1-antitrypsin deficient individuals with normal lung function
NHLBI funded research shows alpha-1-antitrypsin deficient (AATD) individuals with normal lung function have lower respiratory tract mild inflammation. More research […]
The Alpha-1 Foundation mourns the loss of Dr. James Gadek
James E. Gadek, 76, passed away on January 24, 2023. He was born in Elizabeth, New Jersey on September 23, […]
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Protect Yourself Against Health Insurance Fraud
The Alpha-1 Foundation wants you to have the knowledge to protect yourself and your family against health insurance fraud and […]
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Alpha-1 Foundation partners with The Cleveland Clinic on New Continuing Medical Education Series
Designed to advance the knowledge and improve the diagnostic and treatment competence of healthcare providers caring for patients with Alpha-1. […]
Dr. Jeffrey Teckman’s Liver Research Video Feature
The Science of Healing: Alpha-1 Antitrypsin Deficiency Alpha-1 Foundation research grant funding has supported his work to better understand the […]
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Winter Wellness by Dr. Robert Sandhaus
Winter Wellness by Dr. Robert A. Sandhaus Featured in Alpha-1-to-One Magazine: Ask the Alpha Doc Winter 2022 Q: Should I […]
Conference of Deputy Ministers of Health authorized Canadian Blood Services to issue a request for proposals (RFP) for Health Canada-approved A1-PI products
On December 23, 2022, Alpha-1 Canada was informed that the Conference of Deputy Ministers of Health authorized Canadian Blood Services […]
CSL Behring: Looking Back at 2022
CSL Behring asked leaders in patient advocacy to share examples of creativity and innovation in 2022. Learn what they’re most […]
Wave Life Sciences and GSK Announce Collaboration to Drive Discovery and Development of Oligonucleotide Therapeutics Focusing on Novel Genetic Targets
Wave Life Sciences recently hosted Alpha Dan Coffin and his wife Kathi at their offices to speak with employees about […]
Study finds mutations that could contribute to increased liver disease in patient populations
“This model gives us the ability to study injury to liver cells resulting from both MZ and ZZ genotypes. This […]
November Alpha-1 Awareness Month: Week 4 Recap
Week #4 of the Virtual Walk has come to an end… and the feeling of THANKFULNESS for the Alpha-1 community […]
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The Alpha-1 Community Mourns the Loss of Veteran AlphaNet Coordinator Doug Turley
It is with great sadness that we share the news that AlphaNet Coordinator Doug Turley passed away on November 22, […]
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Week 3 Recap: Awareness Month Continues!
Week 3 for the Virtual Walk was a huge success! We had many individual walkers from across the country out […]
Alpha Athletes-Part of the Pack
Congratulations to Rob Ploke who submitted Kangchenjunga the third-highest mountain in the world at 28,169 feet. Rob, a longtimefriend of […]
Week 2 Recap: Let’s Cure It! Alpha-1 Awareness Month
The second week of the Alpha-1 Virtual Walks was a huge success! We are officially at the halfway mark of […]
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Announcing Andrew A. Wilson MD as the Alpha-1 Foundation’s new Scientific Director
FOR IMMEDIATE RELEASE November 10, 2022- The Alpha-1 Foundation announces the appointment of Andrew A. Wilson, MD as its new […]
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Week 1 Recap: Alpha-1 Awareness Month 2022
November is finally here and with it comes cooler temperatures, autumn scenery, and most importantly, Alpha-1 Awareness Month! On November […]
Grifols receives FDA clearance for AlphaID™ At Home
Grifols receives FDA clearance for AlphaID™ At Home, the first free service for U.S. consumers to determine their risk for […]
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Vertex Advances Program Targeting Alpha-1 Antitrypsin Deficiency
– Initiates first-in-human trial of next-wave AAT corrector, VX-634 – Phase 2 study evaluating the impact of longer-term treatment with VX-864 to […]
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