2023 Alpha-1 Awareness Month: Week 3 Highlights
As we approach the last week of Alpha-1 Awareness Month, we are inspired by the Alpha-1 community and their dedication […]
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Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
2023 Alpha-1 Awareness Month: Week 2 Highlights
Week 2 of the 2023 Alpha-1 Awareness Month was a huge success! The Alpha-1 Virtual Walks are off to an […]
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2023 Alpha-1 Awareness Month: Week 1 Highlights
“Make your Move” into the journey of Alpha-1 Awareness Month with our Week 1 Recap! The enthusiasm and commitment of […]
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GLASSIA® (Takeda) Augmentation Therapy Added to the Canadian Blood Services’ Formulary
November 1, 2023 • Alpha-1 Canada Alpha-1 Canada is thrilled to announce that after much deliberation, the Conference of Deputy […]
Vital Care Hosts Walk for Alpha-1
On Wednesday, October 26th, the 2023 Annual Franchise Conference of Vital Care took place in Orlando, FL. What made this […]
Hudson Introduces Bipartisan Legislation to Increase Access to Plasma-Based Medicines
“The Alpha-1 Foundation is proud to endorse The PLASMA Act in support of patients with rare diseases, like Alpha-1 antitrypsin deficiency and […]
Alpha-1 Foundation partners with rare disease organizations to applaud the introduction of a bill to improve access to evidence-based care for rare disease patients
The Alpha-1 Foundation, along with 60 rare disease organizations, is proud to support the “PROTECT Rare Act” to support patients […]
How You Can Donate Plasma and Save a Life
Alpha Dan Coffin shared his plasma story with the PPTA to increase awareness of plasma donations and thank the donors […]
2023 Escape to the Cape & Alpha-1 Riding for a Reason
The Alpha-1 Foundation was proud to partner with the American Lung Association (ALA) for the 27th year of Escape the […]
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Step Forward for Alpha-1 Denver Walk & Picnic
Alphas, friends, and family came together on August 6, 2023 for the Step Forward for Alpha-1 Colorado Walk and Picnic. […]
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Fraughen Blue Paper Published in the latest issue of the American Journal of Respiratory and Critical Care Medicine
Augmentation Therapy For Severe Alpha-1 Antitrypsin Deficiency Improves Survival And Is Decoupled From Spirometric Decline- A Multi-National Registry Analysis Authors: […]
Alpha-1: Best practices for testing for this and other late-onset genetic diseases
Kenneth Irvine of the Alpha-1 Foundation spoke with Geoff Case of RARE Revolution Magazine about the organization’s research efforts. Kenneth […]
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Alpha, Donald Helms Celebrates One-Year Anniversary of Liver Transplant by Hosting Golf Tournament to benefit the Alpha-1 Foundation
Donald Helms hosted his first Building Friends for A Cure Event (BFC) Golf Tournament in honor of the one-year anniversary […]
Alpha-1 Parent completes Ironman triathlon in honor of Alpha Son
Craig Hazelden, Alpha-1 Kid parent, set out to do an Ironman triathlon in Bolton, England to raise funds for the […]
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Salazar Introduces Legislation to Expand Home Infusions for Medicare Beneficiaries with Alpha-1
WASHINGTON, D.C. – Reps. María Elvira Salazar (R-FL) and Chellie Pingree (D-ME) have reintroduced the John W. Walsh Alpha-1 Home Infusion Act. If passed, […]
Traveling as an Alpha
Your questions answered by Skip Scribner, NREMT-P, President at Advanced Aeromedical, Inc. Q: How do I travel on airplanes […]
2023 Alpha-1 National Conference Recap
The Alpha-1 Foundation recently held the highly anticipated 2023 Alpha-1 National Conference “Blazing the Trail Together for Alpha-1” in Dallas, […]
2023 Alpha-1 Grant Awards Reception
“One of my primary goals is to bring new, young investigators into the Alpha-1 research community to ensure that we […]
Announcement of the 2023 Ab Rees Fast Track Grants
The Alpha-1 Foundation is proud to announce the inaugural recipients of the 2023 Ab Rees Fast Track Grants. Congratulations to […]
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Ace Out Alpha-1!
Justis Frank a junior at Palmetto Senior High School in Miami, Florida organized a fundraising event to benefit the Alpha-1 […]
Your Help is Needed…. Act Now! Debt Ceiling Action Alert
ACTION ALERT! May 16, 2023 The debt ceiling could hit as early as June 1, 2023 and there is a […]
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ACCC Letter of Support for HELP Copays Act
The Alpha-1 Foundation signed on with other member organizations of the All Copays Count Coalition in support for the HELP […]
Grifols launches AlphaID at Home, enabling U.S. consumers to self-screen for genetic COPD
Now available in the U.S., this free, innovative genetic health risk service lets consumers screen for their risk of alpha1-antitrypsin […]
Exciting improvements are coming to Accessia Health patient assistance!
Every year, Accessia Health works to ensure we are optimizing our program offerings to best serve the needs of our […]
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