Alphas in Action Advocacy Week
On Monday, April 4, 2022, the Alpha-1 community came together on a Zoom reception call to kick-off the Spring 2022 […]
Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
The Floridian: Elvira Salazar, Pingree Tackle Alpha-1 Home Infusion Act
THE FLORIDIAN April 1, 2022- Florida Rep. Maria Elvira Salazar (R), working alongside Minnesota Rep. Chellie Pingree (D), has introduced […]
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Introduction of H.R. 7346: John W. Walsh Home Infusion Act in the House of Representatives
FOR IMMEDIATE RELEASE –Today, April 1, 2022, H.R. 7346: John W. Walsh Home Infusion Act will be introduced. This legislation, […]
Congresswomen Salazar and Pingree Introduce Bipartisan Legislation to Ensure Medicare Beneficiaries With Rare Hereditary Disease Can Receive Home Infusions
Washington, D.C. – Today, Congresswomen Maria Elvira Salazar (FL-27) and Chellie Pingree (ME-1) introduced the John W. Walsh Alpha-1 Home […]
Alpha-1 Foundation signs on with collaborations to “Live Better and Liver Longer” through Pulmonary Rehabilitation
Over 16 million people in the US have COPD and up to 60% go undiagnosed. COPD is the third leading […]
Celtic Connection 2022 “The Gathering”
The 14th Annual Celtic Connection took place virtually on Saturday, March 5th. The event committee joined together this year to […]
Alpha-1 Foundation spotlights Rare Disease Awareness at the February Alpha-1 Education Day
The Alpha-1 Foundation kicked off its educational series for 2022 with the Alpha-1 Education Day on Saturday, February 12, 2022. […]
Tennessee Donor Services launches #BeTheGift Challenge to register more organ donors
The following article was published by News Channel 5 Nashville. To access the original article, please click here. NASHVILLE, Tenn. […]
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What to Know About the KF94 Mask
The following information was published in the New York Times. To access the full article, please click here. Even as […]
Letter to Congress: Build Back Better 2.0
February 11, 2022 The Honorable Nancy Pelosi Speaker U.S. House of Representatives Washington, DC 20515 The Honorable Charles Schumer Majority […]
ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update, Approval of Thermo Fisher
“The Alpha-1 Foundation is pleased with the recent developments that have come to fruition, this is exciting and significant news […]
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COVID-19 Omicron Update
Missed the COVID-19 Omicron Update Webinar? Watch the webinar now on-demand to hear the answers of frequently asked questions relating […]
FDA Takes Key Action by Approving Second COVID-19 Vaccine
Today, the U.S. Food and Drug Administration approved a second COVID-19 vaccine. The vaccine has been known as the Moderna […]
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ZEMAIRA® Alpha-1 Proteinase Inhibitor (Human) Update
“Our industry partners at CSL Behring are keeping in close contact with us regarding updates for the Alpha-1 community. The […]
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History of Vaccines & Update on COVID-19 Vaccination
By Robert A. Sandhaus, MD, PhD, FCCP and Bruce C. Trapnell, MD Previously, we discussed vaccination against SARS-2 CoV, the […]
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Alpha-1 Kids: Your Healthcare Checklist
TESTING There is no one recommendation for testing children for Alpha-1. This is a question that should be answered with […]
Navigating the U.S. health insurance landscape for children with rare diseases: a qualitative study of parents’ experiences
Background: Parents of children with rare diseases often face uncertainty about diagnosis, treatment, and costs associated with healthcare for their […]
2022 State of the Union Address
As we look forward to a promising 2022, President and CEO of the Alpha-1 Foundation, Scott Santarella shares his vision […]
Alpha-1 Foundation Unveils COVID-19 Event Grid for 2022 Events
The Alpha-1 Foundation has created a detailed guideline of criteria that will be used to determine Foundation event activities in […]
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Important COVID-19 Omicron Variant Update for Alphas
December 29, 2021- Important COVID-19 Omicron Variant Update for Alphas While Omicron may be mild in patients without lung disease, […]
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Grifols Hits Milestone of Screening One Million Patients for Alpha-1
“On behalf of Alpha-1 patients and families, we applaud Grifols for this incredible milestone of 1 million screenings through their […]
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Coronavirus (COVID-19) Update: FDA Authorizes First Oral Antiviral for Treatment of COVID-19
Today, the U.S. Food and Drug Administration issued an emergency use authorization (EUA) for Pfizer’s Paxlovid (nirmatrelvir tablets and ritonavir tablets, co-packaged […]
Updated COVID-19 Guidance & Recommendations for Alphas regarding the Omicron Variant
Emergence of Omicron CDC has been collaborating with global public health and industry partners to learn about Omicron, as we […]
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60+ Organizations Sign-On to Letter to Protect Orphan Drug Tax Credit for Individuals Living with Autoimmune Disease
On behalf of the estimated 50 million Americans with autoimmune and immune-mediated diseases, the undersigned 64 organizations write to you […]
