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The Alpha-1 Foundation was excited to convene a Building Friends for a Cure (BFC (Building Friends for a Cure)) Training […]
Pragmatic Solutions to Clinical Trial Endpoints for Lung Diseases in AATD, and AAT Variant Nomenclature The Alpha-1 Foundation was excited […]
Read More… from 26th Gordon L. Snider Critical Issues Workshop
March 15, 2024 Dr. Meena Seshamani Director, Center for Medicare Deputy Administrator, Centers for Medicare & Medicaid Services 7500 Security […]
Read More… from Alpha-1 Foundation Among 32 Organizations in Response to CMS Draft MP3 Guidance
On this St. Patrick’s Day, we are lucky and grateful for the outstanding and unwavering commitment of the Alpha-1 community. […]
Read More… from Happy St. Patrick’s Day from The Alpha- 1 Foundation
The 16th Annual Celtic Connection will take place this weekend on Saturday, March 9th in at the Newton Marriott in Boston, […]
Read More… from Join us in Boston for the 16th Annual Celtic Connection
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]
CSL Behring asked the leaders of patient advocacy groups – and CSL staff – to explain why rare conditions deserve […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
“The acquisition of Inhibrx by Sanofi represents an exciting moment for the Alpha-1 community. Sanofi is a leading expert in […]
Read More… from Sanofi wades into AATD in bid for Inhibrx’s rare disease drug
CSL Behring, a business unit of CSL, has been providing the Alpha-1 community with ZEMAIRA for 20 years, and are […]
November Alpha-1 Awareness Month was a huge success. The Alpha-1 Community has officially reached and surpassed its 2023 fundraising goal. […]
Read More… from 2023 Alpha-1 Awareness Month: Week 4 Highlights
As we approach the last week of Alpha-1 Awareness Month, we are inspired by the Alpha-1 community and their dedication […]
Read More… from 2023 Alpha-1 Awareness Month: Week 3 Highlights
Week 2 of the 2023 Alpha-1 Awareness Month was a huge success! The Alpha-1 Virtual Walks are off to an […]
Read More… from 2023 Alpha-1 Awareness Month: Week 2 Highlights
“Make your Move” into the journey of Alpha-1 Awareness Month with our Week 1 Recap! The enthusiasm and commitment of […]
Read More… from 2023 Alpha-1 Awareness Month: Week 1 Highlights
November 1, 2023 • Alpha-1 Canada Alpha-1 Canada is thrilled to announce that after much deliberation, the Conference of Deputy […]
On Wednesday, October 26th, the 2023 Annual Franchise Conference of Vital Care took place in Orlando, FL. What made this […]
“The Alpha-1 Foundation is proud to endorse The PLASMA Act in support of patients with rare diseases, like Alpha-1 antitrypsin deficiency and […]
The Alpha-1 Foundation, along with 60 rare disease organizations, is proud to support the “PROTECT Rare Act” to support patients […]
Alpha Dan Coffin shared his plasma story with the PPTA to increase awareness of plasma donations and thank the donors […]
The Alpha-1 Foundation was proud to partner with the American Lung Association (ALA) for the 27th year of Escape the […]
Read More… from 2023 Escape to the Cape & Alpha-1 Riding for a Reason
Alphas, friends, and family came together on August 6, 2023 for the Step Forward for Alpha-1 Colorado Walk and Picnic. […]
Read More… from Step Forward for Alpha-1 Denver Walk & Picnic
Augmentation Therapy For Severe Alpha-1 Antitrypsin Deficiency Improves Survival And Is Decoupled From Spirometric Decline- A Multi-National Registry Analysis Authors: […]
Kenneth Irvine of the Alpha-1 Foundation spoke with Geoff Case of RARE Revolution Magazine about the organization’s research efforts. Kenneth […]
Read More… from Alpha-1: Best practices for testing for this and other late-onset genetic diseases
