Filter:
The Alpha-1 Foundation honors Dr. Gerard Turino, a pulmonary trailblazer today, May 16th, 2024 on his 100th birthday! Gerard M. Turino, […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
April 25, 2024 marks the seventh annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]
Read More… from Raising Awareness on European Alpha-1 Awareness Day, April 25, 2024
Researchers at Boston Medical Center (BMC) and Boston University (BU) announced findings from a new research study, detailing the development […]
Read More… from Study furthers understanding of lung regeneration
President Biden on Wednesday will tout Democrats’ efforts to lower the cost of inhalers after drugmakers announced plans to cap […]
The Alpha-1 Foundation was excited to convene a Building Friends for a Cure (BFC (Building Friends for a Cure)) Training […]
Pragmatic Solutions to Clinical Trial Endpoints for Lung Diseases in AATD, and AAT Variant Nomenclature The Alpha-1 Foundation was excited […]
Read More… from 26th Gordon L. Snider Critical Issues Workshop
March 15, 2024 Dr. Meena Seshamani Director, Center for Medicare Deputy Administrator, Centers for Medicare & Medicaid Services 7500 Security […]
Read More… from Alpha-1 Foundation Among 32 Organizations in Response to CMS Draft MP3 Guidance
On this St. Patrick’s Day, we are lucky and grateful for the outstanding and unwavering commitment of the Alpha-1 community. […]
Read More… from Happy St. Patrick’s Day from The Alpha- 1 Foundation
The 16th Annual Celtic Connection will take place this weekend on Saturday, March 9th in at the Newton Marriott in Boston, […]
Read More… from Join us in Boston for the 16th Annual Celtic Connection
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
WASHINGTON – U.S. Senators Bill Cassidy, M.D. (R-LA), Mark Warner (D-VA), and Amy Klobuchar (D-MN) introduced legislation to ease access to supplemental oxygen […]
CSL Behring asked the leaders of patient advocacy groups – and CSL staff – to explain why rare conditions deserve […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
“The acquisition of Inhibrx by Sanofi represents an exciting moment for the Alpha-1 community. Sanofi is a leading expert in […]
Read More… from Sanofi wades into AATD in bid for Inhibrx’s rare disease drug
CSL Behring, a business unit of CSL, has been providing the Alpha-1 community with ZEMAIRA for 20 years, and are […]
November Alpha-1 Awareness Month was a huge success. The Alpha-1 Community has officially reached and surpassed its 2023 fundraising goal. […]
Read More… from 2023 Alpha-1 Awareness Month: Week 4 Highlights
As we approach the last week of Alpha-1 Awareness Month, we are inspired by the Alpha-1 community and their dedication […]
Read More… from 2023 Alpha-1 Awareness Month: Week 3 Highlights
Week 2 of the 2023 Alpha-1 Awareness Month was a huge success! The Alpha-1 Virtual Walks are off to an […]
Read More… from 2023 Alpha-1 Awareness Month: Week 2 Highlights
“Make your Move” into the journey of Alpha-1 Awareness Month with our Week 1 Recap! The enthusiasm and commitment of […]
Read More… from 2023 Alpha-1 Awareness Month: Week 1 Highlights
November 1, 2023 • Alpha-1 Canada Alpha-1 Canada is thrilled to announce that after much deliberation, the Conference of Deputy […]
On Wednesday, October 26th, the 2023 Annual Franchise Conference of Vital Care took place in Orlando, FL. What made this […]
“The Alpha-1 Foundation is proud to endorse The PLASMA Act in support of patients with rare diseases, like Alpha-1 antitrypsin deficiency and […]
The Alpha-1 Foundation, along with 60 rare disease organizations, is proud to support the “PROTECT Rare Act” to support patients […]
