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Category: News

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August 14, 2024

July 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from July 2024 PubMed Articles

August 6, 2024

C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium

Critical Path Institute’s (C-Path) Critical Path for Alpha-1 Antitrypsin Deficiency (CPA-1) consortium today announced the addition of several key advisory […]

Read More… from C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium

August 5, 2024

Biomarkers Associated with Future Severe Liver Disease in Children with Alpha-1 Antitrypsin Deficiency

“For many years we have known that most kids with ZZ Alpha-1 do fine, but a few get very sick […]

Read More… from Biomarkers Associated with Future Severe Liver Disease in Children with Alpha-1 Antitrypsin Deficiency

July 25, 2024

Kelly, Tillis Introduce Bipartisan Legislation to Increase Access to Plasma-Based Medicines

Today, Senators Mark Kelly (D-AZ) and Thom Tillis (R-NC) introduced the bipartisan Preserving Life-saving Access to Specialty Medicines in America […]

Read More… from Kelly, Tillis Introduce Bipartisan Legislation to Increase Access to Plasma-Based Medicines

July 23, 2024

Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations

Plasma Hero, an initiative of the Immune Deficiency Foundation, spotlights Alpha-1 Antitrypsin Deficiency in a recent article.  Thank you to […]

Read More… from Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations

July 10, 2024

Raising Alpha-1 Awareness in Oregon

Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]

Read More… from Raising Alpha-1 Awareness in Oregon

July 10, 2024

Verona Pharmaceuticals announces FDA approval for Ensifentrine (Ohtuvayre), a treatment for COPD

On June 26, 2024, Verona Pharmaceuticals announced that its new medication, Ensifentrine (Ohtuvayre), was approved by the U.S. Food and […]

Read More… from Verona Pharmaceuticals announces FDA approval for Ensifentrine (Ohtuvayre), a treatment for COPD

July 3, 2024

2024 Bettina B. Irvine Invitational Classic

On Wednesday, May 29th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]

Read More… from 2024 Bettina B. Irvine Invitational Classic

July 3, 2024

Batter Up… It’s time to Strike Out Alpha-1!

Blake Aaronson is a 12-year-old Alpha kid and a baseball star looking to strike out Alpha-1 this summer. Together with […]

Read More… from Batter Up… It’s time to Strike Out Alpha-1!

July 2, 2024

Cones for a Cure: Double Scoop of Fun & Fundraising!

The first annual Cones for a Cure Building Friends for a Cure (BFC) was help on Saturday, June 29, 2024, at the […]

Read More… from Cones for a Cure: Double Scoop of Fun & Fundraising!

July 2, 2024

The Alpha-1 Foundation Welcomes New Board Members

The Alpha-1 Foundation announces the selection of two new members of the board of directors, Erin Carr and Alice Turner, […]

Read More… from The Alpha-1 Foundation Welcomes New Board Members

July 2, 2024

Jon Hagstrom selected for ATS Patient Advisory Roundtable (PAR)

The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is an essential part of the ATS structure. Comprised of CEOs […]

Read More… from Jon Hagstrom selected for ATS Patient Advisory Roundtable (PAR)

June 24, 2024

Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program

Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy,  On behalf of the […]

Read More… from Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program

June 18, 2024

Saint Louis University Researchers Identify a Biomarker for Severe Liver Disease in Infants

ST. LOUIS — In a new study, Saint Louis University School of Medicine researchers and colleagues have identified biomarkers in […]

Read More… from Saint Louis University Researchers Identify a Biomarker for Severe Liver Disease in Infants

June 3, 2024

May 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from May 2024 PubMed Articles

May 30, 2024

Recent Publication on INBRX-101 in Journal of the COPD Foundation

Today, Volume 11, Issue 3 of Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation (JCOPDF) was published online and included Recombinant Alpha-1 […]

Read More… from Recent Publication on INBRX-101 in Journal of the COPD Foundation

May 24, 2024

Alpha-1 Foundation recognizes 2024 Grants Award Recipients at ATS Reception

On Monday, May 20th over 160 attendees joined together in San Diego, California during the annual ATS International Conference to […]

Read More… from Alpha-1 Foundation recognizes 2024 Grants Award Recipients at ATS Reception

May 20, 2024

Celebrate Clinical Trials Day May 20, 2024

The Alphas in our community are what powers Alpha-1 research! In honor of Clinical Trials Day, help us find a […]

Read More… from Celebrate Clinical Trials Day May 20, 2024

May 16, 2024

Happy 100th Birthday Dr. Gerard Turino!

The Alpha-1 Foundation honors Dr. Gerard Turino, a pulmonary trailblazer today, May 16th, 2024 on his 100th birthday! Gerard M. Turino, […]

Read More… from Happy 100th Birthday Dr. Gerard Turino!

May 6, 2024

March & April 2024 PubMed Articles

The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]

Read More… from March & April 2024 PubMed Articles

April 25, 2024

Raising Awareness on European Alpha-1 Awareness Day, April 25, 2024

April 25, 2024 marks the seventh annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]

Read More… from Raising Awareness on European Alpha-1 Awareness Day, April 25, 2024

April 25, 2024

Study furthers understanding of lung regeneration

Researchers at Boston Medical Center (BMC) and Boston University (BU) announced findings from a new research study, detailing the development […]

Read More… from Study furthers understanding of lung regeneration

April 3, 2024

New Caps on Cost of Inhalers

President Biden on Wednesday will tout Democrats’ efforts to lower the cost of inhalers after drugmakers announced plans to cap […]

Read More… from New Caps on Cost of Inhalers

March 27, 2024

Building Friends for a Cure Training

The Alpha-1 Foundation was excited to convene a Building Friends for a Cure (BFC (Building Friends for a Cure)) Training […]

Read More… from Building Friends for a Cure Training

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