Compassion is a Key Weapon Helping Us Defeat the Coronavirus: James K. Stoller, Peter J. Rea and Alan Kolp
Co-authored by Alpha-1 Foundation Board of Director James Stoller, MD, MS CLEVELAND — Tips to avoid becoming infected with COVID-19 […]
Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
2020 European Alpha-1 Awareness Day
25 April 2020 marked the third annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic […]
The Associated Press Remembers COVID-19 Patients From Around The World. Alpha friend Joanne Melody is Remembered.
Joanne Mellady, an incredible individual and active volunteer of the Alpha-1 Foundation is remembered for her love of life. Joanne […]
Global Plasma Leaders Collaborate to Accelerate Development of Potential COVID-19 Hyperimmune Therapy
Partnership brings together world-leading plasma companies to focus on developing and delivering a hyperimmune immunoglobulin in the global fight against […]
Centers for Medicare & Medicaid Services Announcement on Home Infusions During COVID-19
For Immediate Release April 1, 2020 -Alphas on Medicare have a new Choice! The Centers for Medicare and Medicaid […]
APLUS Supports Plasma Donor Recognition & Home Infusion
March 24, 2020 The American Plasma Users Coalition (APLUS) appreciates the current efforts of your agency to protect public health […]
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BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)
In light of the Public Health Emergency concerning the coronavirus disease 2019 (COVID-19), the Office for Civil Rights (OCR) at […]
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Takeda- Our Coronavirus Efforts: Research & Development and COVID-19, Coronavirus Efforts & Update
As a global pharmaceutical leader, we are doing all we can to protect the health of our employees, their families […]
Facing Dire Shortages, 50 Boston Collaborators Develop Their Own FDA-Approved Coronavirus Test
A team of more than 50 volunteers at the Center for Regenerative Medicine (CReM) on Boston University’s Medical Campus, directed by Alpha doctor, […]
CARES ACT Bill (S.3548) passed by The Senate
March 26, 2020 Early this morning, the Senate passed a $2 trillion COVID-19 relief bill. The Bill (S. 3548) is […]
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Grifols Announces Formal Collaboration with US Government to Produce the First Treatment Specifically Targeting COVID-19
Barcelona, March 25, 2020 – Grifols today announces that it has entered into a formal collaboration with the United States […]
Coronavirus: Alpha 1 Group Gives Specific Guidance for Patients
Because of COVID-19’s impacts on the lungs, the U.S. Alpha-1 Foundation has provided detailed, specific guidance for patients who have alpha […]
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US COPD Coalition Member Organizations Seek Waiver to Allow Expanded Access to Respiratory Therapists During Pandemic
This coalition waiver request adds three additional options for physicians and home health agencies as they endeavor to keep those with […]
COVID-19: CSL continues to provide medicines to patients around the world.
CSL continues to provide medicines to patients around the world. Safeguarding our people, patients and donors remains our top priority. […]
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WEDNESDAY, MARCH 18 COVID-19 Update from the Alpha-1 Foundation & AlphaNet
STATEMENT UPDATED: March 18, 2020 It is our commitment to provide you with updated guidelines on COVID-19, please find the […]
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The FDA has granted Emergency Use Authorization for two commercially developed coronavirus tests– providing fast results within 4 hours.
Shortly after the FDA granted an Emergency Use Authorization to its first commercially developed coronavirus test—developed by Roche for use […]
NBCNews.com Article: As Coronavirus Spreads, Immunocompromised Young People Ask Peers to Keep Them In Mind
For many immunocompromised people, social distancing isn’t a new endeavor. Alpha-1 Antitrypsin Deficiency is sometimes called an “invisible disability”. This […]
THURSDAY, MARCH 12 COVID-19 Update from the Alpha-1 Foundation & AlphaNet
STATEMENT UPDATED: March 12, 2020 Please note, this statement is specific to the United States. If you are an individual […]
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COVID-19 Update from the Alpha-1 Foundation & AlphaNet
STATEMENT UPDATED: March 9, 2020 Please note, this statement is specific to the United States. If you are an individual […]
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Grifols Update Regarding the Novel Coronavirus
As the situation with the novel coronavirus rapidly evolves, we wanted to inform you that Grifols is taking measures in […]
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Don’t be green with envy… Join us this Saturday for the 2020 Celtic Connection
March 4, 2020- The 2020 Celtic Connection will take place this Saturday, March 7th at the Boston Marriott Newton to […]
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Update on 2019 novel coronavirus from the Alpha-1 Foundation & AlphaNet
STATEMENT UPDATED: March 2, 2020 The current outbreak of 2019 novel coronavirus (COVID-19) was first identified in China but has […]
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Rare Disease Day 2020
WHO: The Alpha-1 Community! Every Alpha, family member, caregiver, friend, healthcare professional researcher and industry member can participate. The Alpha-1 […]
Are You Informed: Clinical Trials
https://www.alpha1.org/alphas-friends-family/resources/clinical-trials/ A clinical trial is a research study in which one or more human subjects are prospectively assigned to one […]
