BIOPHARMA LEADERS UNITE TO STAND WITH SCIENCE
Nine CEOs sign historic pledge to continue to make the safety and well-being of vaccinated individuals the top priority in […]
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Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
Vaccine Allocation NAS Advisory Group Letter
September 4, 2020 Committee on Equitable Allocation of Vaccine for the Novel Coronavirus; National Academy of Medicine; National Academies of […]
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It’s never to late to help: Read how Cathy Gould’s journey led her right back to helping others.
Tucked away under the trees at her Shelocta-area home, there’s a special place where Cathy Gould spends her days, writing […]
NIH Awards Multicenter Rare Disease Grant to Alpha-1 Antitrypsin Disease Cohort: Longitudinal Biomarker Study of Disease
August 18, 2020 The National Institutes of Health (NIH), National Heart, Lung, and Blood Institute (NHLBI) has announced the award […]
2020 John W. Walsh Translational Research Award
Nazli Khodayari, PhD receives the 2020 John W. Walsh Translational Research Award for the research grant entitled “Novel Biomarkers for […]
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PPTA: Letter to Secretary Azar
Dear Secretary Azar: On behalf of the Plasma Protein Therapeutics Association (PPTA), we wish to commend the Department’s efforts to […]
Help Us Say Thank You to Plasma Donors!
What better way for the Alpha-1 community to thank plasma donors and staff than from the heart! Let them know […]
President Signs Executive Orders on Making Telehealth Flexibilities Permanent and Increasing Access to Rural Health
August 4, 2020– President Trump signed an Executive Order on Improving Rural Health and Telehealth Access. The purpose of the […]
Advocacy Webinar Summer Series: Register today, to help change tomorrow for Alphas!
Want to learn how to make your voice heard to change public policy while raising awareness for Alpha-1 Antitrypsin Deficiency? […]
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Alpha-1 Foundation welcomes new Board of Director, Jon Hagstrom
The Alpha-1 Foundation is proud to announce and introduce its newest Board of Director, Jon Hagstrom. Jon Hagstom was diagnosed […]
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Join Alpha, Chris Riely for a summer virtual Building Friends for a Cure Yoga Class
Register now for a great Alpha-1 fundraiser, Saturday, August 1, 2020 at 9:00 AM ET Clarissa (Chris) Riely started practicing […]
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John Lewis – A Friend to Our Community
On July 17th, the COPD Community lost one of its best friends, Congressman John Lewis. We have all been aware […]
Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening
Re: Proposed Research Approach for Chronic Obstructive Pulmonary Disease: Screening Dear Task Force Members: The Alpha-1 Foundation appreciates the opportunity […]
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ISCT Statement on the Marketing of Unproven Stem Cell Treatments for COVID-19
In the light of the unfolding COVID-19 pandemic, there is urgent need for new therapies, particularly for critically ill patients. […]
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A Highly Phenotyped Open Access Repository of Alpha-1 Antitrypsin Deficiency Pluripotent Stem Cells
Individuals with the genetic disorder alpha-1 antitrypsin deficiency (AATD) are at risk of developing lung and liver disease. Patient induced […]
COPD Foundation Announces New Appointment
The Alpha-1 Foundation congratulates Dr. James Crapo on his new appointment as the Chairman of the Board of Directors and […]
Virtual Alpha-1 National Conference: Day 3 Recap
From the Desk of Miriam O’Day:Day three of the conference kicked off with an incredible presentation from keynote speaker, Dr. […]
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Virtual Alpha-1 National Conference: Day 2 Recap
Day 2 Recap “I have enjoyed all of the sessions and presentations. Such excellent questions from the community!” […]
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Virtual Alpha-1 National Conference: Day 1 Recap
“All of our experts have been so generous with their genius.” – Richard Lovrich, Alpha-1 patient. Thank you for registering […]
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Be Part of the First Ever Virtual Alpha-1 National Conference…. Here’s Why
The Alpha-1 Foundation is excited to launch the first ever Virtual National Conference. In 2020, we have provided the entire […]
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Publication in “Gastroenterology”: Study on Liver Involvement in mild Alpha-1 Antitrypsin Deficiency
Study on liver involvement in mild alpha-1-antitrypsin deficiency published in “Gastroenterology” The Alpha1-Liver Team from Aachen, Germany, which coordinates the […]
MEDICARE AND MEDICAID PROGRAMS; POLICY AND REGULATORY REVISIONS IN RESPONSE TO THE COVID-19 PUBLIC HEALTH EMERGENCY
The 26 undersigned organizations are pleased to submit our comments on the Centers for Medicare & Medicaid Services’ (CMS’) continuing […]
COVID Survivors’ Blood Plasma Is A Sought-After New Commodity
Diana Berrent learned she had tested positive for COVID-19 on a Wednesday in mid-March. Within a day, she had received […]
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Compassion is a Key Weapon Helping Us Defeat the Coronavirus: James K. Stoller, Peter J. Rea and Alan Kolp
Co-authored by Alpha-1 Foundation Board of Director James Stoller, MD, MS CLEVELAND — Tips to avoid becoming infected with COVID-19 […]
