In memory of Fred Walsh, beloved Alpha and Friend
It is with great sadness that we share the news that Alpha-1 community leader Fred Walsh passed away peacefully on […]
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Author: Alpha-1 Foundation
Posts by Alpha-1 Foundation
September 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Recognizing World Oxygen Day, October 2, 2024
World Oxygen Day celebrates everyone who benefits from oxygen therapy. From babies to adults, millions of people rely on oxygen […]
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Alpha-1 Foundation Mourns the Loss of Fred Walsh
Dear Alpha-1 Community, It is with great sadness and heavy hearts that we share with you the passing of Fred […]
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New Medicare Prescription Payment Plan – A Patient’s Guide
Medicare patients in the Part D prescription drug program often face significant out-of-pocket costs early in the year while trying […]
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August 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The ERS International Congress 2024
The ERS International Congress 2024 is happening in Vienna, Austria, hosted by The European Respiratory Society (ERS). This is the largest […]
Join Team Alpha-1: Escape to the Cape
Celebrating 40 Years of the American Lung Association’s (ALA) Escape to the Cape and 28 Years of Partnership with the […]
Living well with Alpha-1: One man’s journey from truck driving to advocacy
Daniel Grimm spent decades as a certified professional driver of tractor-trailers, hauling loads up and down the East Coast. It […]
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Inhaled alpha-1-antitrypsin (AAT) restores lower respiratory tract protease- antiprotease homeostasis and reduces inflammation in AAT-deficient individuals: A randomized phase 2 study
Mark Brantly1, James Stocks2, Jorge Lascano1, Tammy Flagg1, Ann M. Jeffers2, Shuzi Z. Owens2, Torry A. Tucker2, Megan Devine2 Noga […]
July 2024 PubMed Articles
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
C-Path Welcomes New Advisory Membersto Alpha-1 Antitrypsin Deficiency Consortium
Critical Path Institute’s (C-Path) Critical Path for Alpha-1 Antitrypsin Deficiency (CPA-1) consortium today announced the addition of several key advisory […]
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Biomarkers Associated with Future Severe Liver Disease in Children with Alpha-1 Antitrypsin Deficiency
“For many years we have known that most kids with ZZ Alpha-1 do fine, but a few get very sick […]
Kelly, Tillis Introduce Bipartisan Legislation to Increase Access to Plasma-Based Medicines
Today, Senators Mark Kelly (D-AZ) and Thom Tillis (R-NC) introduced the bipartisan Preserving Life-saving Access to Specialty Medicines in America […]
Those with Alpha-1 Antitrypsin Deficiency depend on plasma donations
Plasma Hero, an initiative of the Immune Deficiency Foundation, spotlights Alpha-1 Antitrypsin Deficiency in a recent article. Thank you to […]
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Raising Alpha-1 Awareness in Oregon
Natasha Durant, Alpha Mom and Oregon Support Group Co-Leader began planning for the local 4th of July parade early this year! […]
Verona Pharmaceuticals announces FDA approval for Ensifentrine (Ohtuvayre), a treatment for COPD
On June 26, 2024, Verona Pharmaceuticals announced that its new medication, Ensifentrine (Ohtuvayre), was approved by the U.S. Food and […]
2024 Bettina B. Irvine Invitational Classic
On Wednesday, May 29th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]
Batter Up… It’s time to Strike Out Alpha-1!
Blake Aaronson is a 12-year-old Alpha kid and a baseball star looking to strike out Alpha-1 this summer. Together with […]
Cones for a Cure: Double Scoop of Fun & Fundraising!
The first annual Cones for a Cure Building Friends for a Cure (BFC) was help on Saturday, June 29, 2024, at the […]
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The Alpha-1 Foundation Welcomes New Board Members
The Alpha-1 Foundation announces the selection of two new members of the board of directors, Erin Carr and Alice Turner, […]
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Jon Hagstrom selected for ATS Patient Advisory Roundtable (PAR)
The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is an essential part of the ATS structure. Comprised of CEOs […]
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Alpha-1 Foundation and 130 Organizations Support 2024 Reauthorization of the Rare Pediatric Disease Priority Review Voucher Program
Dear Senate Majority Leader Chuck Schumer, Senate Minority Leader McConnell, Chairman Sanders, and Ranking Member Cassidy, On behalf of the […]
Saint Louis University Researchers Identify a Biomarker for Severe Liver Disease in Infants
ST. LOUIS — In a new study, Saint Louis University School of Medicine researchers and colleagues have identified biomarkers in […]
